Sickle Cell Disease Association of America, Inc. (SCDAA)
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Convention

SCDAA 43rd Annual Convention




2015 Convention PowerPoint Presentation

 

THURSDAY, SEPTEMBER 24, 2015

Community-Based Best Practices
Collecting Data to Improve CBO Viability - Jennifer Fields, MPH

Finding the Patients – The Outreach Strategy    TaLana Hughes, MPH

CONCURRENT WORKSHOPS

Priapism – Call to Treatment - Arthur L. Burnett, MD, MBA, FACS
SCD - Young Adult Transition - Julie Kanter, MD
Meeting Reproductive Challenges of SCD in Adolescent and Adult Women - Kathryn Hassell, MD and Kim Smith-Whitley, MD

Nursing Perspectives – Interdisciplinary Collaborations to Improve Health Outcomes in Individuals Living with Sickle Cell Janice Beatty, BSN


FRIDAY, SEPTEMBER 25, 2015

CHARLES F. WHITTEN, MD MEMORIAL LECTURE   
Breaking Barriers – Connecting Patients & Families to High Quality Care” - Michael Lu, MD, MS, MPH

COMMUNITY BASED PROGRAMS

Top Ladies of Distinction, Inc:  Sickle Cell Disease Initiative   - Teresa Norton
The Development of an Outreach Toolkit for Sickle Cell Disease - Rev. Halima Heyward
Carolinas Sickle Cell Collaborative -  Kathy Norcott, MS, MPA
Inspiring More Minds: Enhancing The Lives Of Individuals with Sickle Cell Disease - Cynthra Scott, Bronwyn Scott

PATIENT CARE I


Clinical Outcomes in Pediatric and Adult Patients with Sickle Cell Disease: Results Of A 3-Year, Prospective, Longitudinal, Noninterventional Registry Study - Elizabeth Yang, MD

Development And Validation Of A Web-Based Decision Aid To Facilitate Shared Decision Making In Sickle Cell Disease By Patients And Families - Lakshmanan Krishnamurti, MD
Developing an Adult Provider Network for Transitioning Adolescents and Young Adults - Dawn Canada, LCSW
Marijuana use in Adults with Sickle Cell Disease: Issues of Medical Care and Social Justice - Jonathan Spodick, MA, LCSW

PSYCHOSOCIAL AND PUBLIC HEALTH

Fatigue in Children and Adolescents with Sickle Cell Disease - Krystal Trout, MA
Disease Knowledge and Compliance in Adolescents - Camille Coleman, MPH 
The Role And Influence Of Spirituality For Young Parents Facing The Diagnosis Of Sickle Cell Disease In Their Child - Pastor R. Lorraine Brown, M.Div. RN, BS, CPHP
Initiating a Parent Mentor Program for Sickle Cell Disease - Monika Piccardi, RN

SATURDAY, SEPTEMBER 26, 2015

NATIONAL PATIENT ADVOCATE LECTURE
“The Role of the Patient in Empowering Change” - Shirley Miller

PCORI’s Efforts to Leverage Engagement in Patient-Centered Comparative Effectiveness Research - Ayodola Anise, MHS

PATIENT CARE II

What Do Patients Consider Important In Making Medical Decisions about Sickle Cell Disease: Results of a Nationwide Study - Diana Ross, MSN, RN
A Patient Centered Quality Improvement Team to Improve Emergency Department Management of Sickle Cell Disease    Cher Durham, RN and Gail Aiken


NURSING SYMPOSIUM


Evidence-Based Guideline for Acute Pain Management with Sickle Cell Disease at an Urgent Care - Sunghee Kim, DNP student, MSN, APRN, ANP-BC, NP-C


Featured Media
Watch Video2015 Lonzie Lee Jones Patient Advocacy Symposium

2015 Lonzie Lee Jones Patient Advocacy Symposium

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