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Convention

SCDAA 43rd Annual Convention

SCDAA 43rd Annual National Convention

Key Speakers will continue to be announced as we draw closer to convention. Check back for news and announcements!


Thursday September 24, 2015

Community Based Best Practices: “Strengthening Community –Based Care Coordination”

Gladys Robinson, PhD

Utilizing CHW’s to Increase Patient Access
10:45 am – 11:15 am

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Jennifer Fields

Collecting Data to Improve CBO Viability
11:15 am – 11:45 am

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TaLana Hughes, MPH

Finding the Patients – The Outreach Strategy
11:45 am - 12:15 pm

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Educational Session: “Building a Strong CBO Infrastructure – The Key to Corporate Funding”

Val Bias - CEO of the National Hemophilia Foundation (NHF)

“Building a Strong CBO Infrastructure – The Key to Corporate Funding”
1:30 pm - 2:30 pm

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Educational Session Concurrent Workshops Session I & II Thursday September 24, 2015 2:30 - 3:45 pm & 4:00 - 5:15


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Plenary Session I: Friday, September 25, 2015
"The Provider and Patient Relationship"
Charles F. Whitten, MD Memorial Lecture

Michael C. Lu, MD, MS, MPH - Keynote Speaker

Associate Administrator Maternal and Child Health Health Resources & Services Administration U.S. Department of Health & Human Services

"Breaking Barriers - Connecting Patients & Families to High Quality Care"Friday September 25, 2015 9:00 am - 9:30 am

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Plenary Session II: "Stimulating Patient & Provider Activism"
Friday, September 25, 2015

Jonca Bull, MD - Keynote Speaker
Assistant Commissioner for Minority Health U.S. Food & Drug Administration

"Implementation Strategies to Increase Awareness about Sickle Cell Disease"
10:15 am - 10:45 am

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Plenary Session III: Saturday, September 26, 2015
"Progress in Long Term Therapies & Cure"

Clarice D. Reid, MD Lecture

George J. Dover - Keynote Speaker
Pediatrician-in-Chief of the Johns Hopkins Children’s Center & Director of  the Department of Pediatrics, Given Foundation Professor of Pediatrics as well as Professor of Medicine and Oncology “Hydroxyurea - Then and Now”
8:30 am - 9:00 am

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Mark Walters, MD
Jordan Family Center Director of the Blood and Marrow Transplantation Program at Children's Hospital & Research Center, Oakland 

“Innovations in Stem Cell Transplant & Gene Therapy”
9:00 am -9:30 am

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Vence Bonham, MD
National Institutes of Health National Human Genome Research Institute 

Opportunities for SCD in Precision Medicine
9:30 am - 10:00 am

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Plenary Session IV: Saturday, September 26, 2015
"Activating Patient Empowerment and Engagement"

National Patient Advocate Lecture

Shirley Miller - Keynote Speaker
Manager, Community Programs SCD Carolinas HealthCare System/Levine Cancer Institute

“The Role of the Patient in Empowering Change”
10:15 am - 10:45 am

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Ayodola Anise - Keynote Speaker

Program Officer at the Patient-Centered Outcomes Research Institute (PCORI)

"The Effectiveness of Patient-Centered Research"
10:45 am - 11:15 am

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Featured Media
Watch Video2015 Lonzie Lee Jones Patient Advocacy Symposium

2015 Lonzie Lee Jones Patient Advocacy Symposium

Watch Video