Join the Sickle Cell Community in Demanding an Apology from NBCUniversal
NBCUniversal owes a public apology to the Sickle Cell community. Sign the petition requesting NBCUniversal join us to take positive steps for those families struggling with Sickle Cell Disease.
Kier "Junior" Spates to appear on "Beyond Just Talk with S.L. Young" on WOLDC 1450 AM
Sickle Cell Celebrity Ambassador Kier "Junior" Spates to appear on "Beyond Just Talk with S.L. Young" on WOLDC 1450 AM. Tune in to hear him speak about his experiences and his plans as a national Ambassador to the SCDAA.
Pfizer Announces Enrollment Of First Patient In Phase 3 Trial
Pfizer Inc. (NYSE:PFE) today announced that the first patient has been enrolled in the RESET (Rivipansel: Evaluating Safety, Efficacy and Time to Discharge) study – a Phase 3 clinical trial assessing the efficacy and safety of rivipansel for the treatment of vaso-occlusive crisis in hospitalized individuals with sickle cell disease who are six years of age or older.
NHLBI Forum “Engaging the Community: Developing Solutions”
The National Heart, Lung, and Blood Institute will host a Sickle Cell Disease Forum, “Engaging the Community: Developing Solutions” on June 25-26, 2015 in Bethesda, Maryland.
The SCDAA has been awarded the Health Resources and Services Administration (HRSA), Sickle Cell Disease Newborn Screening Program Grant!
SCDAA has been designated to serve as the National Backbone Organization for the HRSA Sickle Cell Disease Newborn Screening Program. As the national backbone organization SCDAA will work with community-based organizations across the country to implement a strengthened approach to care, collective impact and strategic activities within the Sickle Cell community.
2015 Scholarship Opportunities
We are committed to helping young people with SCD achieve their goals of continued education. Review the offerings of scholarships presented by the SCDAA.