SCDAA Hosts First Lady Antoinette Sassou Nguesso for Advocacy Luncheon
SCDAA recently had the privilege and honor of hosting First Lady Antoinette Sassou Nguesso, the First Lady of the Republic of Congo in an intimate luncheon on the Hill to discuss Sickle Cell Disease and the work being done.
Sickle Cell Walk with the Stars
Join the Sickle Cell Disease Association of America in walking to end Sickle Cell! Held in multiple locations across the nation, the Sickle Cell Walk is SCDAA's largest event dedicated to finding better treatments and a cure for Sickle Cell Disease.
Stay Connected With Get Connected
Get Connected is an excellent resource tool launched by the Sickle Cell Disease Association of America that connects individuals living with sickle cell to research and services. Watch as Ms. Mary Bentley Founder and Executive Director of the Sickle Cell Association of New Jersey explains!
New Heights for Dr. Whitten-Shurney
NHLBI Announces Newest Member of Sickle Cell Advisory Committee. Click below to read more about Dr. Wanda Whitten-Shurney's newest pursuit in advocacy of sickle cell disease.
Sickle Cell Foundation of TN Speaks with Gene Editing Committee
SCDAA was well represented by the Sickle Cell Foundation of Tennessee this past week as CEO and sickle cell patient Trevor Thompson spoke face to face with the Human Gene Editing Committee expressing the views of those affected by sickle cell disease. To read more on Trevor's discussion and the potential benefits and threats surrounding gene-editing technology click below.
#SCD Star: Linda Simien Kelly
One of the greatest things about advocating for sickle cell is meeting those behind the scenes who take a hands-on approach within the community to increase awareness of this painful disease. We receive multiple nominations for #SCD Stars throughout the year from our members. With their nominations, SCDAA gather their stories, uncovering their reason for fighting Sickle Cell Disease and sharing why it’s so important to work together!