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Joint FDA/ASH Led Initiative Highlights Importance of Using Patient Reported Outcomes and Biomarkers in Clinical Trials to Advance SCD Therapies (WASHINGTON,...
Oxbryta™ (voxelotor) tablets Now Approved On behalf of GBT, we are happy to share that Oxbryta (pronounced ox-brye-ta) is now approved...
How gene therapy is helping children with this devastating disease. By Joy Harrington, Writer When Mr. and Mrs. Jones married and left...
(Reuters) – The U.S. Food and Drug Administration said on Monday it approved a drug from Global Blood Therapeutics Inc to...
Nov 19, 2019 CRISPR Therapeutics and Vertex Announce Positive Safety and Efficacy Data From First Two Patients Treated With Investigational CRISPR/Cas9...
By LINDA A. JOHNSON | November 15, 2019 | APNews.com U.S. regulators on Friday approved a new medicine that can help...
New Novartis medicine Adakveo® (crizanlizumab-tmca) approved by FDA to reduce frequency of pain crises in individuals living with sickle cell disease Sickle...
Two health educators have written a children’s book about living with sickle cell disease (SCD). I’m No Different Than You tells...
Sickle Cell Disease Association of America, Inc. (SCDAA) is proud to announce that SCDAA President and CEO Beverley Francis-Gibson was honored...
September is Sickle Cell Awareness Month; Red Cross blood and platelet donations needed for patients This school year students battling sickle...
GlobalBlood Therapeutics, Inc. (GBT) (NASDAQ: GBT) and the Sickle Cell Disease Association of America, Inc. (SCDAA) announced that they will host...
SCDAA is excited to welcome Marie Olivieri Russell, MD as a keynote speaker at the 47th Annual National Convention this October...
SCDAA welcomes Jacqueline Burrell, Principal of J Burrell Communications, LLC, as Communications and Public Relations Manager. Burrell has a wealth of...
SCDAA is excited to feature Dr. Amanda Brandow as a keynote speaker at the 47th Annual National Convention in October. In...
Arielle Juberg, MPH, has joined SCDAA as Program Manager in support of the SCD Newborn Screening Project. Juberg has held notable...
The Sickle Cell Foundation of Georgia, Inc. and SCDAA, Inc. are hosting a special luncheon for the SCD community. Sickle Cell...
New International Media Partnership Will Enhance Awareness Efforts and Increase Awareness about Sickle Cell Disease and Sickle Cell Trait Sickle Cell...
Alikah Adair joins SCDAA as Care Coordinator in support of the SCD Newborn Screening Project. Adair has an extensive history working...
Sickle Cell Disease Association of America, Inc. (SCDAA) and The Pain Community are proud to announce a new partnership that will...
Company Also Launches Disease Awareness Campaign to Raise Awareness Among Physicians About the Silent Damage Caused by Sickle Cell Disease Global...
SCDAA welcomes Laura Lewis Brown to the role of Communications Manager. Brown has extensive expertise in the Communications field which includes...
SCDAA welcomes Ashley Clark as Project Director in support of the SCD Newborn Screening Project. Clark’s professional experience includes the following:...
Melvina Singleton has joined SCDAA as Senior Accountant. Singleton’s prior experience includes financial manager positions as a Controller, Fund Accountant, and...
New National Media Partnership Will Enhance Awareness Efforts and Increase Awareness about Sickle Cell Disease and Sickle Cell Trait Sickle Cell Disease...
The June 4, 2019 issue of Sickle Cell Anemia News features Kiarra Roseburgh, the National Child Ambassador for the Sickle Cell...
This World Sickle Cell Day, Medunik USA, a company dedicated to improving the health and quality of life of Americans with...
ONLINE REGISTRATION CLOSES AT 5PM TODAY ON-SITE REGISTRATION OPENS AT 8:30AM TOMORROW We look forward to seeing everyone tomorrow at the...
On June 19, 2019, for World Sickle Cell Awareness Day, Novartis unveiled “The Untold Stories of Sickle Cell Disease,” a worldwide...
SiNERGe and Sickle Cell Disease Association of America, Inc. (SCDAA) are collaborating with sickle cell advocacy groups, community-based organizations, hospitals, governments...
Innovative Healthcare Programs for Sickle Cell Community On June 10, 2019, Global Blood Therapeutics, Inc. (GBT) (NASDAQ: GBT) announced that five...
TUESDAY, JUNE 18, 2019 | 2:30 – 3:30 PM DIRKSEN SENATE OFFICE BUILDING, ROOM G50 RSVP: Betsy Foss-Campbell, bfoss@asgct.org Join us...
The Alliance to Fight the 40 | Don’t Tax My Health Care, a broad-based coalition committed to repealing the 40 percent...
Mark your calendars for the 2019 Sickle Cell Disease Therapeutics Conference on Sept. 10th in Washington, DC. SCDAA’s Chief Medical Officer,...
Sonia Perkins is an experienced leader and business development professional who brings a proven track record spanning more than 13 years...
SCDAA President/CEO Beverley Francis-Gibson joined Lori Luck, the global medical director for Pfizer Rare Disease and Angie Snyder, a professor at Georgia...
Sickle Cell Disease Association of America, Inc. (SCDAA) and Emerge Woman Magazine have a mutual goal of ensuring that as many people as possible...
We are so excited to give you a glimpse of the amazing stories from YOU – the sickle cell community who...
On Sunday, March 10 at 7:00 p.m. ET, NIH Director Dr. Francis Collins and NIH senior investigator Dr. John Tisdale will be part of a CBS...
The Maryland Sickle Cell Disease Association (MSCDA) will host its Annual Sickle Cell Disease (SCD) Day in Annapolis on March 13,...
Sickle Cell Association of Houston has been working on new state legislation in Texas, and on March 6, 2019, State Representative...
Jordin Sparks is a Grammy-nominated, multi-platinum recording artist, but she also wants to spark a conversation about the emotional and social...
7K Run/ 4K Walk Tri-Cities High School 2575 Harris Street East Point, GA 9AM Sharp Register Today! Free T-Shirt to all...
Dr. Charles F. Whitten: A Physician. Medical pioneer. Founder and President Emeritus of the Sickle Cell Disease Association of America, Inc. Dr. Charles F....
The Clinical-Community Psychology program at the University of Maryland, Baltimore County (UMBC) is currently collecting data which examines the associations among...
—The Access to Excellent Care for Sickle Cell Patients Pilot Program (ACCEL) Supports Novel Projects Aimed at Improving Access to High-Quality...
Sickle Cell Disease Association of America, Inc. (SCDAA) celebrates the life and work of Dr. Doris L. Wethers who died at...
SCDAA will host its 2019 Annual Advocacy Day event on April 8-9, 2019 on Capitol Hill in Washington, DC. Advocacy Day is...
We are equally pleased to report that Justin Bost has been assigned as Communications Specialist in support of SCDAA communications and marketing efforts. From concept...
Sickle Cell Disease Association of America, Inc. (SCDAA) is pleased to announce that Temidayo Makinde, MPA, CHES joins the National Staff as Member...
Join Family Voices of California at the 2019 Annual Health Summit & Legislative Day, on March 10-12, 2019, to hear from experts and...
TORRANCE, Calif., Jan. 28, 2019 /PRNewswire/ — Emmaus Life Sciences, Inc. (Emmaus), a leader in sickle cell disease treatment, announced today that...
Introducing the Blueprint for Complex Care: Opportunities to Advance the Field WEBINAR Date: January 22, 2019 Time: 2:00 pm- 3:00 pm...
The American Society of Gene & Cell Therapy (ASGCT) is proud to announce the first release of the Society’s Patient Education program, a new initiative...
If you are you a researcher, community-based member organization, physician, nurse, social worker or someone working on behalf of people with...
Sickle Cell Disease Association of America, Inc. is pleased to announce the theme for the 47th Annual National Convention: Sickle Cell Community...
Baltimore City native, Gary Bonner, will serve as the Director of Development & Special Initiatives. In this capacity, Bonner will oversee SCDAA’s national...
Tiffany Scott will serve as SCDAA’s Care Coordinator for the Health Resources Services Administration (HRSA) grant-funded Newborn Screening Follow-up Program. In...
CRISPR Therapeutics and Vertex Pharmaceuticals Incorporated today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation...
The Board of Directors and the staff of the Sickle Cell Disease Association of America, Inc. wish you and your families a safe...
