Welcome to the
Sickle Cell Disease
Association of America, Inc.

We serve as the national voice for sickle cell disease working to resolve issues surrounding this rare disease and sickle cell trait. Since 1972, our organization has been on the forefront of improving the quality of health, life and services for individuals, families and communities affected by this rare disease and related conditions. Our 50+ member organizations span 31 states.

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  • Sickle Cell News

  • MARAC Statement on Pociredir

    The Sickle Cell Disease Association of America, Inc. (SCDAA) Medical and Research Advisory Committee (MARAC) is saddened to hear the news that Fulcrum Therapeutics is discontinuing development of its pociredir program for the treatment of.....

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  • SCD Advocacy Update June 2026

    From May 6-7, 24 representatives from 13 SCDAA members organizations across 11 states traveled to Washington, D.C., for SCDAA’s Advocacy Days. Attendees participated in a briefing on May 6, which included information about how to.....

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  • SCDAA and NHLBI To Host Event

    The National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH), in partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA), will host Research That Heals: Partnering to.....

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  • 2026 National Abstract Competition

    The 2026 National Abstract Convention is now open! If you are a researcher, community-based member organization, physician, nurse, social worker or someone working on behalf of people living with sickle cell disease and their families,.....

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Data & Statistics

300,000+

Babies born internationally each year with SCD

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1 in 13

African-Americans have Sickle Cell Trait (SCT)

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100,000

People in the United States have sickle cell disease (SCD)

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1 in 350

Black Americans have sickle cell disease (SCD)

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  • National Program Initiatives

  • SCD C.A.R.E.S. Consortium

    The mission of this initiative is to raise awareness about the importance of clinical trials and why it’s beneficial for sickle cell warriors to participate in them.

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  • Advocacy

    Sickle Cell Disease Association of America, Inc. (SCDAA) actively works with legislators and regulators at both the state and federal levels to advance SCD policies.

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  • CHW Training

    If you have a passion for community health or you have been personally affected by SCD, SCDAA encourages you to apply for community health worker (CHW) training.

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