2019 Sickle Cell Disease Therapeutics Conference

Mark your calendars for the 2019 Sickle Cell Disease Therapeutics Conference on Sept. 10th in Washington, DC. SCDAA’s Chief Medical Officer,...

SCDAA Hires New Director of Development & Special Initiatives

Sonia Perkins is an experienced leader and business development professional who brings a proven track record spanning more than 13 years...

Pfizer, Sickle Cell Advocates Address Disease During Black Press Week

SCDAA President/CEO Beverley Francis-Gibson joined Lori Luck, the global medical director for Pfizer Rare Disease and Angie Snyder, a professor at Georgia...

Emerge Woman Magazine Partners with Sickle Cell Disease Association of America, Inc. to Increase Awareness about Sickle Cell Disease

Sickle Cell Disease Association of America, Inc. (SCDAA) and Emerge Woman Magazine have a mutual goal of ensuring that as many people as possible...

The Sickle Cell Community Has Rallied Together to Join Generation S!

We are so excited to give you a glimpse of the amazing stories from YOU – the sickle cell community who...

CBS 60 Minutes Segment on Gene Therapy Airs March 10th

On Sunday, March 10 at 7:00 p.m. ET, NIH Director Dr. Francis Collins and NIH senior investigator Dr. John Tisdale will be part of a CBS...

Maryland Sickle Cell Disease Association Hosts Annual SCD Day in Annapolis on March 13th

The Maryland Sickle Cell Disease Association (MSCDA) will host its Annual Sickle Cell Disease (SCD) Day in Annapolis on March 13,...

Texas State Representative Jarvis Johnson Files Four Sickle Cell Disease Related Bills

Sickle Cell Association of Houston has been working on new state legislation in Texas, and on March 6, 2019, State Representative...

Jordin Sparks Discusses the Emotional and Social Impact of Sickle Cell Disease

Jordin Sparks is a Grammy-nominated, multi-platinum recording artist, but she also wants to spark a conversation about the emotional and social...

40th Anniversary — Sickle Cell Road Race / Walk

7K Run/ 4K Walk Tri-Cities High School 2575 Harris Street East Point, GA 9AM Sharp Register Today!  Free T-Shirt to all...

Register Now for Camp New Hope 2019!

Charles F. Whitten: Black History Month SCD Pioneers 2019

Dr. Charles F. Whitten: A Physician. Medical pioneer. Founder and President Emeritus of the Sickle Cell Disease Association of America, Inc. Dr. Charles F....

Research Participants Needed

The Clinical-Community Psychology program at the University of Maryland, Baltimore County (UMBC) is currently collecting data which examines the associations among...

GBT Launches ACCEL Grants Program to Improve Access to Care for People with Sickle Cell Disease

—The Access to Excellent Care for Sickle Cell Patients Pilot Program (ACCEL) Supports Novel Projects Aimed at Improving Access to High-Quality...

Dr. Doris Wethers Blazed a Trail for Newborn Testing for Sickle Cell Disease

Sickle Cell Disease Association of America, Inc. (SCDAA) celebrates the life and work of Dr. Doris L. Wethers who died at...

2019 Annual Advocacy Day

SCDAA will host its 2019 Annual Advocacy Day event on April 8-9, 2019 on Capitol Hill in Washington, DC. Advocacy Day is...

SCDAA Hires New Communication Specialist

We are equally pleased to report that Justin Bost has been assigned as Communications Specialist in support of SCDAA communications and marketing efforts. From concept...

SCDAA Hires New Member Services Advisor

Sickle Cell Disease Association of America, Inc. (SCDAA) is pleased to announce that Temidayo Makinde, MPA, CHES joins the National Staff as Member...

2019 Annual Health Summit & Legislative Day

Join Family Voices of California at the 2019 Annual Health Summit & Legislative Day, on March 10-12, 2019, to hear from experts and...

Emmaus Life Sciences Launches Its Commercial Co-Payment Assistance Program for Endari™

TORRANCE, Calif., Jan. 28, 2019 /PRNewswire/ — Emmaus Life Sciences, Inc. (Emmaus), a leader in sickle cell disease treatment, announced today that...

WEBINAR TODAY: Introducing the Blueprint for Complex Care: Opportunities to Advance the Field

Introducing the Blueprint for Complex Care: Opportunities to Advance the Field WEBINAR Date: January 22, 2019 Time: 2:00 pm- 3:00 pm...

ASGCT Society Patient Education Program

The American Society of Gene & Cell Therapy (ASGCT) is proud to announce the first release of the Society’s Patient Education program, a new initiative...

47th Annual National Convention Call for Abstracts

If you are you a researcher, community-based member organization, physician, nurse, social worker or someone working on behalf of people with...

47th Annual National Convention Theme Announced

Sickle Cell Disease Association of America, Inc. is pleased to announce the theme for the 47th Annual National Convention: Sickle Cell Community...

SCDAA Hires New Director of Development & Special Initiatives

Baltimore City native, Gary Bonner, will serve as the Director of Development & Special Initiatives. In this capacity, Bonner will oversee SCDAA’s national...

SCDAA Hires New Care Coordinator

Tiffany Scott will serve as SCDAA’s Care Coordinator for the Health Resources Services Administration (HRSA) grant-funded Newborn Screening Follow-up Program. In...

CRISPR Therapeutics and Vertex Announce FDA Fast Track Designation for CTX001 for the Treatment of Sickle Cell Disease

CRISPR Therapeutics and Vertex Pharmaceuticals Incorporated today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation...

Happy Holidays from SCDAA!

The Board of Directors and the staff of the Sickle Cell Disease Association of America, Inc. wish you and your families a safe...