
CMO Speaks: Fertility Care and SCD
CMO Speaks is a blog featuring the voices of SCDAA’s clinical leadership team. The below article was written by Dr. Lewis...
Join Dr. Marjorie Dejoie Brewer for a mindfulness exercise and start the week off right.
SCDAA’s Medical and Research Advisory Committee (MARAC) issues a statement on influenza, the national shortage of oseltamivir (Tamiflu) and the influenza vaccine.
Learn more about important COVID-19 updates from MARAC.
CMO Speaks is a blog featuring the voices of SCDAA’s clinical leadership team. The below article was written by Dr. Lewis...
December 6, 2022 — The Sickle Cell Disease Association of America (SCDAA) Medical and Research Advisory Committee (MARAC) shares the following:...
An update from John Otsuki, SCDAA government relations manager As I am sure you’re aware, the United States recently completed a...
The NFL’s My Cause My Cleats campaign features players showcasing important causes on their cleats each year during Week 13 games...
The Sickle Cell Disease Association of America (SCDAA) Medical and Research Advisory Committee (MARAC) believes that progress in sickle cell disease...
Many people have questions about sickle cell trait after newborn screening. Dr. Lewis Hsu, SCDAA chief medical officer, answers some of...
This week, two new publications call attention to the barriers to care children with SCD face. Prioritizing Sickle Cell Disease, an article co-authored...
August is National Immunization Awareness Month. What does that mean for individuals with sickle cell disease (SCD)? The Big Picture from...
September is Sickle Cell Awareness Month. Check out these helpful tools and learn more about how to support sickle cell warriors!...
Join an SCDAA member organization at one of these great events this September! The Amazing Race 5K/1K | Starts September 1 |...
Dear Sickle Cell Community, Over the past several months, SCDAA has been working with congressional sickle cell disease (SCD) champions and...
SCDAA regrets to announce that Dr. Samir Ballas passed away on August 12. He was devoted to caring for adults with...
July 20 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of the news...
Dr. Kwaku Ohene-Frempong, a visionary sickle cell doctor and advocate, passed away on May 7, 2022, at 76. A memorial service...
Ahead of World Sickle Cell Awareness Day on June 19, U.S. Senators Chris Van Hollen (D-Md.) and Cory Booker (D-N.J.) introduced...
Partnership Calls on Policymakers to Implement Proposals in 2020 Landmark Report Today, in recognition of World Sickle Cell Day on June...
The Sickle Cell Disease Association of America named Reginald Hart Jr. as chief financial officer. Hart brings more than 20 years...
The Centers for Disease Control and Prevention (CDC) recently drafted an update to its guidelines for prescribing opioids and reached out...
We are devastated to learn of the death of Dr. Kwaku Ohene-Frempong on Saturday, May 7, 2022. Dr. Ohene-Frempong was a...
The Sickle Cell Disease Association of America received the Abbey S. Meyers Leadership Award from the National Organization for Rare Disorders....
March 2022 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee notes that news about COVID-19 continues...
The Sickle Cell Disease Association of America (SCDAA) partnered with Phi Beta Sigma Fraternity Inc. to increase awareness about sickle cell...
Have you experienced barriers to care in the emergency department? In recognition of World Sickle Cell Day on June 19, the Centers...
Our final #BlackHistoryMonth highlight is dedicated to rapper and sickle cell warrior Albert “Prodigy” Johnson, one-half of the iconic 90’s rap...
Meet Paul Williams, one of the founding members of the legendary Motown group The Temptations. Williams began singing as a kid...
Happy Black History Month! Sickle cell can be painful and hard to manage, but it doesn’t need to stop you from...
Happy Black History Month! Sickle cell can be painful and hard to manage, but it doesn’t need to stop you from...
We are devastated to share the news of the passing of Carlton Haywood, Jr., Ph.D., on December 31, 2021. Carlton was an...
December 23, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee reminds the sickle cell community...
On December 20, the FDA placed a partial hold on bluebird bio’s clinical program for lovotibeglogene autotemcel (lovo-cel) gene therapy, temporarily...
The Sickle Cell Disease Association of America (SCDAA) named Regina Hartfield as CEO and president effective Jan. 14, 2022. Hartfield has served...
Beverley Francis-Gibson will be stepping down as SCDAA’s fifth President and CEO on November 12, 2021, after serving the organization for...
Over the past few months, more than 1,000 people in the U.S.A. and Canada were infected with a bacteria called Salmonella....
Thank you to bluebird bio for their generous support of our 49th Annual National Convention! How can you help to spark...
HANOVER, Md.—The Sickle Cell Disease Association of America launched a sickle cell disease clinical trial finder, a centralized, simple-to-navigate website to...
The Sickle Cell Disease Association of America will hold its 49th annual national convention virtually this year from Tuesday, Oct. 12,...
September 24, 2021 — News about COVID-19 continues to move quickly as we weather the pandemic. The Sickle Cell Disease Association...
Centers for Medicare & Medicaid Services (CMS) Administrator Chiquita Brooks-LaSure to deliver keynote SOUTH SAN FRANCISCO, Calif., and BALTIMORE – September...
August 26, 2021 – The Sickle Cell Disease Association of America Medical and Research Advisory Committee has released two statements with...
HCPLive® Announces Partnership With Sickle Cell Disease Association of America (SCDAA) SCDAA’s mission is to advocate for people affected by sickle...
Sickle Cell Disease Association of America named John Otsuki as government relations manager. Otsuki brings experience in regulatory and legislative affairs,...
Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected...
New campaign to raise awareness about connection between sickle cell trait and deadly form of kidney cancer. The Kidney Cancer Association...
Study Title: An adaptive, randomized, placebo-controlled, double-blind, multi-center study of oral FT-4202, a pyruvate kinase activator, in patients with sickle cell...
Sickle Cell Disease Association of America will hold the eighth annual Walk with the Stars fundraiser, where participating teams and individuals...
Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other...
Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other...
May 04, 2021 at 8:00 AM EDT SOUTH SAN FRANCISCO, Calif. and HANOVER, Md., May 04, 2021 (GLOBE NEWSWIRE) —In recognition...
Sickle Cell Disease Association of America partnered with the Sickle Cell Community Consortium to advocate for legislation benefiting people with sickle...
Could you be our next Teen Ambassador? SCDAA is searching for the newest members of our team to represent their generation...
Sickle Cell Disease Association of America, Inc. (SCDAA) and Hemanext Inc., a privately held medical technology company dedicated to improving the...
Sickle Cell Disease Association of America named Nathan Parsons as government relations manager. Parsons brings experience in politics, policy and legislation....
Sickle Cell Disease Association of America (SCDAA) named Briana Hunter program manager. In her position, Hunter oversees the association’s Newborn Screening...
March 1, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of...
For our final #SCDHistoryHighlight of Black History month, we are excited to reflect on the life and work of Dr. Roland...
We’re excited to continue our celebration of Black history this week by highlighting the life and work of Dr. Angella Dorothea Ferguson,...
February 16, 2021 – We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical...
Sickle cell disease plays an important role in black history, and vice versa. This month, we will highlight African American sickle...
Sickle Cell Disease Association of America promoted Kevin Amado Jr. to community impact and engagement manager. Amado joined the association last...
Download the MARAC Alert | Download Spanish Translation | Download French Translation December 14, 2020 – News is evolving rapidly about...
Sickle Cell Disease Association of America named Dr. Lewis Hsu chief medical officer and JaKela Walker chair of the board of...
The Sickle Cell Disease Association of America (SCDAA) and Aruvant Sciences are proud to announce a new partnership to create educational...
Sickle Cell Disease Association of America will hold its 48th annual national convention virtually this year from Tuesday, Oct. 13, through...
Sickle Cell Disease Association celebrates National Sickle Cell Awareness Month Conferences, advocacy, blood donations and other events held throughout September HANOVER,...
SHOW THIS TO YOUR SCHOOL ADMINISTRATOR TO HELP THEM HELP YOU. July 31, 2020 – Opportunities for education after high school include...
SHOW THIS TO YOUR EMPLOYER TO HELP THEM HELP YOU. July 31, 2020 – The Medical and Research Advisory Committee (MARAC) of...
SCDAA MARAC Position on 2020 School Reopening SHOW THIS TO YOUR CHILD’S SCHOOL PRINCIPAL TO HELP THEM HELP YOU. July 27,...
SCDAA proudly announces the addition of two new members joining its ranks: Supporters of Families With Sickle Cell Disease, Inc., in Tulsa...
SCDAA SHINES THE LIGHT ON SICKLE CELL Join SCDAA’s Twitter Party June 19, 2020 9 a.m. – 9 p.m. (June 15,...
May 14, 2020 – On Thursday April 16, 2020, the U.S. Coronavirus Taskforce provided recommendations on reopening the economy, giving states...
SCDAA medical advisory and research committee shares advice to help with the COVID-19 status. Please click image to download and share....
SCDAA medical advisory and research committee shares advice to help with the COVID-19 status. Please click image to download and share....
New Fund Launches to Provide Financial Assistance to People with Sickle Cell Disease Copayment and Premium Assistance Now Available (April 15,...
The Need Continues to Grow The Sickle Cell Disease Association of America is extending its COVID-19 Emergency Fund Campaign to raise funds and...
Funds will be deployed to help SCDAA member organizations (April 2, 2020 – Hanover, MD) Responding to the Sickle Cell Disease...
Raising Money and Giving Grants to Member Organizations in the United States The Sickle Cell Disease Association of America has launched...
Download Provider Advisory Download Sub-Saharan African Provider Advisory An Outline to Decrease Burden and Minimize Morbidity This document will be updated...
DOWNLOAD PATIENT PDF (Spanish Version) DOWNLOAD PATIENT SUB-SAHARAN AFRICAN PDF SHOW THIS TO YOUR MEDICAL PROVIDERS TO HELP THEM HELP...
What You Need to Know About the Coronavirus (COVID-19) With COVID-19 on the forefront of nearly everyone’s minds, SCDAA wants to...
Joint FDA/ASH Led Initiative Highlights Importance of Using Patient Reported Outcomes and Biomarkers in Clinical Trials to Advance SCD Therapies (WASHINGTON,...
Oxbryta™ (voxelotor) tablets Now Approved On behalf of GBT, we are happy to share that Oxbryta (pronounced ox-brye-ta) is now approved...
How gene therapy is helping children with this devastating disease. By Joy Harrington, Writer When Mr. and Mrs. Jones married and left...
(Reuters) – The U.S. Food and Drug Administration said on Monday it approved a drug from Global Blood Therapeutics Inc to...
Nov 19, 2019 CRISPR Therapeutics and Vertex Announce Positive Safety and Efficacy Data From First Two Patients Treated With Investigational CRISPR/Cas9...
By LINDA A. JOHNSON | November 15, 2019 | APNews.com U.S. regulators on Friday approved a new medicine that can help...
New Novartis medicine Adakveo® (crizanlizumab-tmca) approved by FDA to reduce frequency of pain crises in individuals living with sickle cell disease Sickle...
Two health educators have written a children’s book about living with sickle cell disease (SCD). I’m No Different Than You tells...
Sickle Cell Disease Association of America, Inc. (SCDAA) is proud to announce that SCDAA President and CEO Beverley Francis-Gibson was honored...
September is Sickle Cell Awareness Month; Red Cross blood and platelet donations needed for patients This school year students battling sickle...
GlobalBlood Therapeutics, Inc. (GBT) (NASDAQ: GBT) and the Sickle Cell Disease Association of America, Inc. (SCDAA) announced that they will host...
SCDAA is excited to welcome Marie Olivieri Russell, MD as a keynote speaker at the 47th Annual National Convention this October...
SCDAA welcomes Jacqueline Burrell, Principal of J Burrell Communications, LLC, as Communications and Public Relations Manager. Burrell has a wealth of...
SCDAA is excited to feature Dr. Amanda Brandow as a keynote speaker at the 47th Annual National Convention in October. In...
Arielle Juberg, MPH, has joined SCDAA as Program Manager in support of the SCD Newborn Screening Project. Juberg has held notable...
The Sickle Cell Foundation of Georgia, Inc. and SCDAA, Inc. are hosting a special luncheon for the SCD community. Sickle Cell...
New International Media Partnership Will Enhance Awareness Efforts and Increase Awareness about Sickle Cell Disease and Sickle Cell Trait Sickle Cell...
Alikah Adair joins SCDAA as Care Coordinator in support of the SCD Newborn Screening Project. Adair has an extensive history working...
Sickle Cell Disease Association of America, Inc. (SCDAA) and The Pain Community are proud to announce a new partnership that will...
Company Also Launches Disease Awareness Campaign to Raise Awareness Among Physicians About the Silent Damage Caused by Sickle Cell Disease Global...