SCDAA News Advisory: Salmonella and Sickle Cell Disease

Over the past few months, more than 1,000 people in the U.S.A. and Canada were infected with a bacteria called Salmonella....

A Word From Our Sponsor: bluebird bio

Thank you to bluebird bio for their generous support of our 49th Annual National Convention! How can you help to spark change...

SCDAA launches clinical trial finder

HANOVER, Md.—The Sickle Cell Disease Association of America launched a sickle cell disease clinical trial finder, a centralized, simple-to-navigate website to...

SCDAA holds 49th annual national convention virtually

The Sickle Cell Disease Association of America will hold its 49th annual national convention virtually this year from Tuesday, Oct. 12,...

MARAC Advisory Statement Update About COVID-19 Vaccines

September 24, 2021 — News about COVID-19 continues to move quickly as we weather the pandemic. The Sickle Cell Disease Association...

GBT and Sickle Cell Disease Association of America to Host 10th Annual Sickle Cell Disease (SCD) Therapeutics Conference

Centers for Medicare & Medicaid Services (CMS) Administrator Chiquita Brooks-LaSure to deliver keynote SOUTH SAN FRANCISCO, Calif., and BALTIMORE – September...

MARAC Issues Updated COVID-19 Guidance

August 26, 2021 – The Sickle Cell Disease Association of America Medical and Research Advisory Committee has released two statements with...

HCPLive® Announces Partnership With Sickle Cell Disease Association of America (SCDAA)

HCPLive® Announces Partnership With Sickle Cell Disease Association of America (SCDAA) SCDAA’s mission is to advocate for people affected by sickle...

SCDAA names government relations manager

Sickle Cell Disease Association of America named John Otsuki as government relations manager. Otsuki brings experience in regulatory and legislative affairs,...

Sickle Cell Disease Association of America announces new teen ambassador

Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected...

The Kidney Cancer Association and SCDAA launch KNOW & TELL

New campaign to raise awareness about connection between sickle cell trait and deadly form of kidney cancer. The Kidney Cancer Association...

The Hibiscus Study is Enrolling Volunteers

Study Title: An adaptive, randomized, placebo-controlled, double-blind, multi-center study of oral FT-4202, a pyruvate kinase activator, in patients with sickle cell...

Walk with the Stars to support Sickle Cell Disease Association of America

Sickle Cell Disease Association of America will hold the eighth annual Walk with the Stars fundraiser, where participating teams and individuals...

MARAC Statement on Gene Therapy & Bone Marrow Therapies

Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other...

GBT and SCDAA Kick Off “Lift Every Voice to Shine the Light on Sickle Cell”

May 04, 2021 at 8:00 AM EDT SOUTH SAN FRANCISCO, Calif. and HANOVER, Md., May 04, 2021 (GLOBE NEWSWIRE) —In recognition...

SCDAA partners with Sickle Cell Community Consortium

Sickle Cell Disease Association of America partnered with the Sickle Cell Community Consortium to advocate for legislation benefiting people with sickle...

SCDAA’s Teen Ambassador Contest is Open!

Could you be our next Teen Ambassador? SCDAA is searching for the newest members of our team to represent their generation...

SCDAA Launches New Educational Materials to Support Children’s Blood Transfusion

Sickle Cell Disease Association of America, Inc. (SCDAA) and Hemanext Inc., a privately held medical technology company dedicated to improving the...

SCDAA names government relations manager

Sickle Cell Disease Association of America named Nathan Parsons as government relations manager. Parsons brings experience in politics, policy and legislation....

SCDAA names program manager

Sickle Cell Disease Association of America (SCDAA) named Briana Hunter program manager. In her position, Hunter oversees the association’s Newborn Screening...

Temporary Suspension of Clinical Trials

  March 1, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of...

Black History Month: Dr. Roland Scott

For our final #SCDHistoryHighlight of Black History month, we are excited to reflect on the life and work of Dr. Roland...

Black History Month 2021: Dr. Angella Dorothea Ferguson

We’re excited to continue our celebration of Black history this week by highlighting the life and work of Dr. Angella Dorothea Ferguson,...

Statement from SCDAA MARAC

February 16, 2021 – We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical...

SCDAA Celebrates Black History Month 2021

Sickle cell disease plays an important role in black history, and vice versa. This month, we will highlight African American sickle...

SCDAA promotes Kevin Amado Jr.

Sickle Cell Disease Association of America promoted Kevin Amado Jr. to community impact and engagement manager. Amado joined the association last...

MARAC Advisory Statement: COVID-19 Vaccines

Download the MARAC Alert | Download Spanish Translation | Download French Translation December 14, 2020 – News is evolving rapidly about...

Sickle Cell Disease Association names leadership

Sickle Cell Disease Association of America named Dr. Lewis Hsu chief medical officer and JaKela Walker chair of the board of...

Sickle Cell Disease Association of America and Aruvant Sciences Forge New Partnership to Educate Around Gene Therapy

The Sickle Cell Disease Association of America (SCDAA) and Aruvant Sciences are proud to announce a new partnership to create educational...

Sickle Cell Disease Association holds 48th annual national convention virtually

Sickle Cell Disease Association of America will hold its 48th annual national convention virtually this year from Tuesday, Oct. 13, through...

September is Sickle Cell Awareness Month

Sickle Cell Disease Association celebrates National Sickle Cell Awareness Month Conferences, advocacy, blood donations and other events held throughout September HANOVER,...

MARAC Advisory Statement on Post-secondary and Boarding School Education in the Age of COVID-19

SHOW THIS TO YOUR SCHOOL ADMINISTRATOR TO HELP THEM HELP YOU. July 31, 2020 – Opportunities for education after high school include...

MARAC Advisory Statement for SCD Patients Who are Teachers, Administrators, and Other Support Staff during School Reopening

SHOW THIS TO YOUR EMPLOYER TO HELP THEM HELP YOU. July 31, 2020 – The Medical and Research Advisory Committee (MARAC) of...

SCDAA MARAC Position on 2020 School Reopening

SCDAA MARAC Position on 2020 School Reopening SHOW THIS TO YOUR CHILD’S SCHOOL PRINCIPAL TO HELP THEM HELP YOU. July 27,...

NEW SCDAA CHAPTER MEMBERS

SCDAA proudly announces the addition of two new members joining its ranks: Supporters of Families With Sickle Cell Disease, Inc., in Tulsa...

SCDAA Shines the Light on Sickle Cell

SCDAA SHINES THE LIGHT ON SICKLE CELL Join SCDAA’s Twitter Party June 19, 2020 9 a.m. – 9 p.m. (June 15,...

MARAC Advisory Statement Regarding SCD Patients during the time of “Reopening” the U.S. Economy

May 14, 2020 – On Thursday April 16, 2020, the U.S. Coronavirus Taskforce provided recommendations on reopening the economy, giving states...

SCDAA Adds Two New Member Organizations

SCDAA is proud to welcome two new member organizations to its ranks, bringing its total number of chapters up to 48....

Social Adjustments & Response to COVID-19

SCDAA medical advisory and research committee shares advice to help with the COVID-19 status. Please click image to download and share....

Sickle Cell Disease Association of America Partners with HealthWell Foundation

New Fund Launches to Provide Financial Assistance to People with Sickle Cell Disease Copayment and Premium Assistance Now Available (April 15,...

Sickle Cell Disease Association of America Extends its COVID-19 Emergency Fundraiser

The Need Continues to Grow The Sickle Cell Disease Association of America is extending its COVID-19 Emergency Fund Campaign to raise funds and...

SCDAA Receives $100,000 Donation from GBT

Funds will be deployed to help SCDAA member organizations (April 2, 2020 – Hanover, MD)  Responding to the Sickle Cell Disease...

Sickle Cell Disease Association of America Aims to Raise $100,000 in 10 Days to Address Coronavirus

Raising Money and Giving Grants to Member Organizations in the United States The Sickle Cell Disease Association of America has launched...

NEW – Sickle Cell Disease and COVID-19: Provider Advisory

Download Provider Advisory Download Sub-Saharan African Provider Advisory An Outline to Decrease Burden and Minimize Morbidity This document will be updated...

NEW – Health Alert for People with Sickle Cell Disease and their Caregivers

DOWNLOAD PATIENT PDF     (Spanish Version) DOWNLOAD PATIENT SUB-SAHARAN AFRICAN PDF SHOW THIS TO YOUR MEDICAL PROVIDERS TO HELP THEM HELP...

A Health Note From Dr. Biree Andemariam, SCDAA Chief Medical Officer

What You Need to Know About the Coronavirus (COVID-19) With COVID-19 on the forefront of nearly everyone’s minds, SCDAA wants to...

ASH and FDA Unveil New Recommendations to Guide Clinical Development of Sickle Cell Disease Therapies

Joint FDA/ASH Led Initiative Highlights Importance of Using Patient Reported Outcomes and Biomarkers in Clinical Trials to Advance SCD Therapies (WASHINGTON,...

GBT’s Oxbryta™ (voxelotor) tablets is approved for the treatment of sickle cell disease

Oxbryta™ (voxelotor) tablets Now Approved On behalf of GBT, we are happy to share that Oxbryta (pronounced ox-brye-ta) is now approved...

New Hope for a Sickle Cell Cure

How gene therapy is helping children with this devastating disease. By Joy Harrington, Writer When Mr. and Mrs. Jones married and left...

FDA Approves Global Blood Therapeutics Sickle Cell Disease Drug

(Reuters) – The U.S. Food and Drug Administration said on Monday it approved a drug from Global Blood Therapeutics Inc to...

CRISPR Therapeutics and Vertex Announce Positive Safety and Efficacy Data

Nov 19, 2019 CRISPR Therapeutics and Vertex Announce Positive Safety and Efficacy Data From First Two Patients Treated With Investigational CRISPR/Cas9...

US approves new drug to manage sickle cell disease

By LINDA A. JOHNSON | November 15, 2019 |  APNews.com U.S. regulators on Friday approved a new medicine that can help...

Novartis Adakveo approved by FDA for Sickle Cell Disease

New Novartis medicine Adakveo® (crizanlizumab-tmca) approved by FDA to reduce frequency of pain crises in individuals living with sickle cell disease Sickle...

New Children’s Book Aims to Inspire Children with SCD

Two health educators have written a children’s book about living with sickle cell disease (SCD). I’m No Different Than You tells...

SCDAA President and CEO Receives Award from National Association of Real Estate Brokers (NAREB)

Sickle Cell Disease Association of America, Inc. (SCDAA) is proud to announce that SCDAA President and CEO Beverley Francis-Gibson was honored...

Donate Blood to Support Sickle Cell Patients

September is Sickle Cell Awareness Month; Red Cross blood and platelet donations needed for patients This school year students battling sickle...

GBT and SCDAA to Host 8th Annual Sickle Cell Disease (SCD) Therapeutics Conference

GlobalBlood Therapeutics, Inc. (GBT) (NASDAQ: GBT) and the Sickle Cell Disease Association of America, Inc. (SCDAA) announced that they will host...

SCDAA Announces New Keynote Speaker for Convention

SCDAA is excited to welcome Marie Olivieri Russell, MD as a keynote speaker  at the 47th Annual National Convention this October...

SCDAA Hires New Communications and Public Relations Manager

SCDAA welcomes Jacqueline Burrell, Principal of J Burrell Communications, LLC, as Communications and Public Relations Manager. Burrell has a wealth of...

Convention Keynote Speaker Announced

SCDAA is excited to feature Dr. Amanda Brandow as a keynote speaker at the 47th Annual National Convention in October. In...

SCDAA Hires New Program Manager

Arielle Juberg, MPH, has joined SCDAA as Program Manager in support of the SCD Newborn Screening Project. Juberg has held notable...

‘Sickle Cell Saturday’ Highlights Value of Clinical Trials to the SCD Community

The Sickle Cell Foundation of Georgia, Inc. and SCDAA, Inc. are hosting a special luncheon for the SCD community. Sickle Cell...

SCDAA Forms International Media Partnership to Spread SCD Awareness

New International Media Partnership Will Enhance Awareness Efforts and Increase Awareness about Sickle Cell Disease and Sickle Cell Trait Sickle Cell...

SCDAA Hires New Care Coordinator

Alikah Adair joins SCDAA as Care Coordinator in support of the SCD Newborn Screening Project. Adair has an extensive history working...

SCDAA Partners with The Pain Community to Support the Sickle Cell Community by Providing Comprehensive Integrative Pain Management Educational Information

Sickle Cell Disease Association of America, Inc. (SCDAA) and The Pain Community are proud to announce a new partnership that will...

GBT and Advocates Launch Disease Awareness Campaign Focused on Breaking Down Stigmas Associated with Sickle Cell Disease

Company Also Launches Disease Awareness Campaign to Raise Awareness Among Physicians About the Silent Damage Caused by Sickle Cell Disease Global...

SCDAA Hires New Communications Manager

SCDAA welcomes Laura Lewis Brown to the role of Communications Manager. Brown has extensive expertise in the Communications field which includes...

SCDAA Hires New Project Director

SCDAA welcomes Ashley Clark as Project Director in support of the SCD Newborn Screening Project. Clark’s professional experience includes the following:...

SCDAA Hires New Senior Accountant

Melvina Singleton has joined SCDAA as Senior Accountant. Singleton’s prior experience includes financial manager positions as a Controller, Fund Accountant, and...

BLACKDOCTOR.ORG is a New Media Partner of the Sickle Cell Disease Association of America, Inc.

New National Media Partnership Will Enhance Awareness Efforts and Increase Awareness about Sickle Cell Disease and Sickle Cell Trait  Sickle Cell Disease...

SCDAA Plans June 22 ‘Walk With the Stars’ Fundraiser in Baltimore

The June 4, 2019 issue of Sickle Cell Anemia News features Kiarra Roseburgh, the National Child Ambassador for the Sickle Cell...

On World Sickle Cell Day, Medunik USA highlights the importance of early treatment of Sickle Cell Disease

This World Sickle Cell Day, Medunik USA, a company dedicated to improving the health and quality of life of Americans with...

6th Annual Walk with the Stars is Tomorrow – Rain or Shine

ONLINE REGISTRATION CLOSES AT 5PM TODAY ON-SITE REGISTRATION OPENS AT 8:30AM TOMORROW We look forward to seeing everyone tomorrow at the...

Novartis Unveils “The Untold Stories of Sickle Cell Disease,” a worldwide patient story project.

On June 19, 2019, for World Sickle Cell Awareness Day, Novartis unveiled “The Untold Stories of Sickle Cell Disease,” a worldwide...

Shine the Light on Sickle Cell” Campaign Celebrates the 10th Anniversary of World Sickle Cell Awareness Day

SiNERGe and Sickle Cell Disease Association of America, Inc. (SCDAA) are collaborating with sickle cell advocacy groups, community-based organizations, hospitals, governments...

GBT Awards More than $200,000 in Grants to Five Nonprofit Organizations through New ACCEL Program Aimed at Improving Access to Healthcare for People Living with Sickle Cell Disease

Innovative Healthcare Programs for Sickle Cell Community On June 10, 2019, Global Blood Therapeutics, Inc. (GBT) (NASDAQ: GBT) announced that five...

Congressional Briefing on Progress in Sickle Cell Disease Treatment & Policy Implications

TUESDAY, JUNE 18, 2019 | 2:30 – 3:30 PM DIRKSEN SENATE OFFICE BUILDING, ROOM G50 RSVP: Betsy Foss-Campbell, bfoss@asgct.org Join us...

National Family, Patient, Public Sector, and Multi-employer Groups Join Effort to Protect Health Care Coverage

The Alliance to Fight the 40 | Don’t Tax My Health Care, a broad-based coalition committed to repealing the 40 percent...

2019 Sickle Cell Disease Therapeutics Conference

Mark your calendars for the 2019 Sickle Cell Disease Therapeutics Conference on Sept. 10th in Washington, DC. SCDAA’s Chief Medical Officer,...

SCDAA Hires New Director of Development & Special Initiatives

Sonia Perkins is an experienced leader and business development professional who brings a proven track record spanning more than 13 years...

Pfizer, Sickle Cell Advocates Address Disease During Black Press Week

SCDAA President/CEO Beverley Francis-Gibson joined Lori Luck, the global medical director for Pfizer Rare Disease and Angie Snyder, a professor at Georgia...

Emerge Woman Magazine Partners with Sickle Cell Disease Association of America, Inc. to Increase Awareness about Sickle Cell Disease

Sickle Cell Disease Association of America, Inc. (SCDAA) and Emerge Woman Magazine have a mutual goal of ensuring that as many people as possible...

The Sickle Cell Community Has Rallied Together to Join Generation S!

We are so excited to give you a glimpse of the amazing stories from YOU – the sickle cell community who...

CBS 60 Minutes Segment on Gene Therapy Airs March 10th

On Sunday, March 10 at 7:00 p.m. ET, NIH Director Dr. Francis Collins and NIH senior investigator Dr. John Tisdale will be part of a CBS...

Maryland Sickle Cell Disease Association Hosts Annual SCD Day in Annapolis on March 13th

The Maryland Sickle Cell Disease Association (MSCDA) will host its Annual Sickle Cell Disease (SCD) Day in Annapolis on March 13,...

Texas State Representative Jarvis Johnson Files Four Sickle Cell Disease Related Bills

Sickle Cell Association of Houston has been working on new state legislation in Texas, and on March 6, 2019, State Representative...

Jordin Sparks Discusses the Emotional and Social Impact of Sickle Cell Disease

Jordin Sparks is a Grammy-nominated, multi-platinum recording artist, but she also wants to spark a conversation about the emotional and social...

40th Anniversary — Sickle Cell Road Race / Walk

7K Run/ 4K Walk Tri-Cities High School 2575 Harris Street East Point, GA 9AM Sharp Register Today!  Free T-Shirt to all...

Register Now for Camp New Hope 2019!

Charles F. Whitten: Black History Month SCD Pioneers 2019

Dr. Charles F. Whitten: A Physician. Medical pioneer. Founder and President Emeritus of the Sickle Cell Disease Association of America, Inc. Dr. Charles F....

Research Participants Needed

The Clinical-Community Psychology program at the University of Maryland, Baltimore County (UMBC) is currently collecting data which examines the associations among...

GBT Launches ACCEL Grants Program to Improve Access to Care for People with Sickle Cell Disease

—The Access to Excellent Care for Sickle Cell Patients Pilot Program (ACCEL) Supports Novel Projects Aimed at Improving Access to High-Quality...

Dr. Doris Wethers Blazed a Trail for Newborn Testing for Sickle Cell Disease

Sickle Cell Disease Association of America, Inc. (SCDAA) celebrates the life and work of Dr. Doris L. Wethers who died at...

2019 Annual Advocacy Day

SCDAA will host its 2019 Annual Advocacy Day event on April 8-9, 2019 on Capitol Hill in Washington, DC. Advocacy Day is...

SCDAA Hires New Communication Specialist

We are equally pleased to report that Justin Bost has been assigned as Communications Specialist in support of SCDAA communications and marketing efforts. From concept...

SCDAA Hires New Member Services Advisor

Sickle Cell Disease Association of America, Inc. (SCDAA) is pleased to announce that Temidayo Makinde, MPA, CHES joins the National Staff as Member...

2019 Annual Health Summit & Legislative Day

Join Family Voices of California at the 2019 Annual Health Summit & Legislative Day, on March 10-12, 2019, to hear from experts and...

Emmaus Life Sciences Launches Its Commercial Co-Payment Assistance Program for Endari™

TORRANCE, Calif., Jan. 28, 2019 /PRNewswire/ — Emmaus Life Sciences, Inc. (Emmaus), a leader in sickle cell disease treatment, announced today that...

WEBINAR TODAY: Introducing the Blueprint for Complex Care: Opportunities to Advance the Field

Introducing the Blueprint for Complex Care: Opportunities to Advance the Field WEBINAR Date: January 22, 2019 Time: 2:00 pm- 3:00 pm...

ASGCT Society Patient Education Program

The American Society of Gene & Cell Therapy (ASGCT) is proud to announce the first release of the Society’s Patient Education program, a new initiative...