The Maryland Sickle Cell Disease Association (MSCDA) will host its Annual Sickle Cell Disease (SCD) Day in Annapolis on March 13, 2019. This year, MSCDA is working on the passage of SB 600/HB 761. Click here to view the flyer.
SB 600, the Sickle Cell Treatment Act of 2019, introduced by Sen. Shirley Nathan-Pulliam (D- Dist. 44 in Baltimore City and Baltimore County) would do three main things:
- Increase the number of SCD infusion Centers in Maryland. Johns Hopkins is currently the only center that is 100 percent dedicated to SCD. Johns Hopkins has shown that its infusion center has reduced hospital admissions;
- Improve outreach efforts to providers and patients. Many patients, outside of the Baltimore area, see providers not well versed in SCD leading to subpar care; and
- Reactivate a committee charged with monitoring and reporting on the state of adult SCD care in Maryland that was originally appointed by the Governor in 2006 but has been inactive since 2009.
Hearings were held in the Senate Education, Health and Environmental Affairs Committee on Tuesday, March 26, and in the House Health and Government Operations Committee on Wednesday, March 27. The cross filed House Bill is HB 761 sponsored by Del. Edith Patterson (D – Dist. 28, Charles County). Both bills were heard without opposition. Click here to read the bill.
MSCDA provided testimony, as did a patient and a mother whose daughter has SCD. Click here to view the testimony.