Sickle Cell Disease Association of America, Inc. (SCDAA) and The Pain Community are proud to announce a new partnership that will increase education and awareness information about comprehensive integrative pain management and wellness to support individuals living with sickle cell disease (SCD) and their family members. The partnership will use digital platforms and other collateral to share important resources and to engage those affected by SCD in achieving better health and wellness in partnership with their healthcare providers.
“Pain is the most common complication of SCD, and one of main reasons that people with SCD go to the emergency room or hospital,” said SCDAA President and CEO Beverley Francis-Gibson. “The Pain Community shares with SCDAA the goal of improving the quality of life for individuals living with pain, and SCDAA looks forward to working with them to help empower those living with sickle cell disease by providing education and advocacy information for managing pain.”
SCD is a global health problem affecting millions of people around the world. It is estimated that approximately 100,000 Americans have the disease, and more than 1,000,000 worldwide have sickle cell trait. Each year, approximately 1,000 babies in the United States are born with SCD, and there is no universal cure for this life-threatening disease.
“The Pain Community is thrilled to partner with the Sickle Cell Disease Association of America, Inc.,” said TPC Board Chair Karen Keifer, MSN, APN, NP-C, RN-BC. “This affiliation is a great opportunity to amplify SCDAA’s work and share the educational, coping and advocacy resources available that are free at We look forward to ensuring that the sickle cell community has resources to help manage their pain and improve their quality of life.”