Author's Posts

Emma Day

SCDAA News Advisory: Salmonella and Sickle Cell Disease

  • October 22, 2021
  • Emma Day

Over the past few months, more than 1,000 people in the U.S.A. and Canada were infected with a bacteria called Salmonella.... Continue Reading

A Word From Our Sponsor: bluebird bio

  • October 14, 2021
  • Emma Day

Thank you to bluebird bio for their generous support of our 49th Annual National Convention! How can you help to spark change... Continue Reading

SCDAA launches clinical trial finder

  • October 13, 2021
  • Emma Day

HANOVER, Md.—The Sickle Cell Disease Association of America launched a sickle cell disease clinical trial finder, a centralized, simple-to-navigate website to... Continue Reading

SCDAA holds 49th annual national convention virtually

  • October 5, 2021
  • Emma Day

The Sickle Cell Disease Association of America will hold its 49th annual national convention virtually this year from Tuesday, Oct. 12,... Continue Reading

MARAC Advisory Statement Update About COVID-19 Vaccines

  • October 1, 2021
  • Emma Day

September 24, 2021 — News about COVID-19 continues to move quickly as we weather the pandemic. The Sickle Cell Disease Association... Continue Reading

GBT and Sickle Cell Disease Association of America to Host 10th Annual Sickle Cell Disease (SCD) Therapeutics Conference

  • September 8, 2021
  • Emma Day

Centers for Medicare & Medicaid Services (CMS) Administrator Chiquita Brooks-LaSure to deliver keynote SOUTH SAN FRANCISCO, Calif., and BALTIMORE – September... Continue Reading

MARAC Issues Updated COVID-19 Guidance

  • September 7, 2021
  • Emma Day

August 26, 2021 – The Sickle Cell Disease Association of America Medical and Research Advisory Committee has released two statements with... Continue Reading

HCPLive® Announces Partnership With Sickle Cell Disease Association of America (SCDAA)

  • September 7, 2021
  • Emma Day

HCPLive® Announces Partnership With Sickle Cell Disease Association of America (SCDAA) SCDAA’s mission is to advocate for people affected by sickle... Continue Reading

SCDAA names government relations manager

  • August 12, 2021
  • Emma Day

Sickle Cell Disease Association of America named John Otsuki as government relations manager. Otsuki brings experience in regulatory and legislative affairs,... Continue Reading

Sickle Cell Disease Association of America announces new teen ambassador

  • July 19, 2021
  • Emma Day

Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected... Continue Reading

The Kidney Cancer Association and SCDAA launch KNOW & TELL

  • June 21, 2021
  • Emma Day

New campaign to raise awareness about connection between sickle cell trait and deadly form of kidney cancer. The Kidney Cancer Association... Continue Reading

The Hibiscus Study is Enrolling Volunteers

  • June 6, 2021
  • Emma Day

Study Title: An adaptive, randomized, placebo-controlled, double-blind, multi-center study of oral FT-4202, a pyruvate kinase activator, in patients with sickle cell... Continue Reading

Walk with the Stars to support Sickle Cell Disease Association of America

  • May 17, 2021
  • Emma Day

Sickle Cell Disease Association of America will hold the eighth annual Walk with the Stars fundraiser, where participating teams and individuals... Continue Reading

MARAC Statement on Gene Therapy & Bone Marrow Therapies

  • May 15, 2021
  • Emma Day

Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other... Continue Reading

GBT and SCDAA Kick Off “Lift Every Voice to Shine the Light on Sickle Cell”

  • May 4, 2021
  • Emma Day

May 04, 2021 at 8:00 AM EDT SOUTH SAN FRANCISCO, Calif. and HANOVER, Md., May 04, 2021 (GLOBE NEWSWIRE) —In recognition... Continue Reading

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