Author's Posts


Sickle Cell Disease Association of America announces new teen ambassador

  • July 19, 2021
  • emma

Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected... Continue Reading

The Kidney Cancer Association and SCDAA launch KNOW & TELL

  • June 21, 2021
  • emma

New campaign to raise awareness about connection between sickle cell trait and deadly form of kidney cancer. The Kidney Cancer Association... Continue Reading

MARAC Statement on Gene Therapy & Bone Marrow Therapies

  • May 20, 2021
  • emma

Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other... Continue Reading

GBT and SCDAA Kick Off “Lift Every Voice to Shine the Light on Sickle Cell”

  • May 4, 2021
  • emma

May 04, 2021 at 8:00 AM EDT SOUTH SAN FRANCISCO, Calif. and HANOVER, Md., May 04, 2021 (GLOBE NEWSWIRE) —In recognition... Continue Reading

SCDAA partners with Sickle Cell Community Consortium

  • April 28, 2021
  • emma

Sickle Cell Disease Association of America partnered with the Sickle Cell Community Consortium to advocate for legislation benefiting people with sickle... Continue Reading

SCDAA’s Teen Ambassador Contest is Open!

  • April 8, 2021
  • emma

Could you be our next Teen Ambassador? SCDAA is searching for the newest members of our team to represent their generation... Continue Reading

SCDAA Launches New Educational Materials to Support Children’s Blood Transfusion

  • April 1, 2021
  • emma

Sickle Cell Disease Association of America, Inc. (SCDAA) and Hemanext Inc., a privately held medical technology company dedicated to improving the... Continue Reading

SCDAA names government relations manager

  • March 31, 2021
  • emma

Sickle Cell Disease Association of America named Nathan Parsons as government relations manager. Parsons brings experience in politics, policy and legislation.... Continue Reading

SCDAA names program manager

  • March 23, 2021
  • emma

Sickle Cell Disease Association of America (SCDAA) named Briana Hunter program manager. In her position, Hunter oversees the association’s Newborn Screening... Continue Reading

Temporary Suspension of Clinical Trials

  • March 2, 2021
  • emma

  March 1, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of... Continue Reading

Black History Month: Dr. Roland Scott

  • February 26, 2021
  • emma

For our final #SCDHistoryHighlight of Black History month, we are excited to reflect on the life and work of Dr. Roland... Continue Reading

Black History Month 2021: Dr. Angella Dorothea Ferguson

  • February 19, 2021
  • emma

We’re excited to continue our celebration of Black history this week by highlighting the life and work of Dr. Angella Dorothea Ferguson,... Continue Reading

Statement from SCDAA MARAC

  • February 17, 2021
  • emma

February 16, 2021 – We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical... Continue Reading

SCDAA Celebrates Black History Month 2021

  • February 5, 2021
  • emma

Sickle cell disease plays an important role in black history, and vice versa. This month, we will highlight African American sickle... Continue Reading

SCDAA promotes Kevin Amado Jr.

  • January 12, 2021
  • emma

Sickle Cell Disease Association of America promoted Kevin Amado Jr. to community impact and engagement manager. Amado joined the association last... Continue Reading

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