Author's Posts

Justin Bost

2019 Annual Advocacy Day

  • February 12, 2019
  • Justin Bost

SCDAA will host its 2019 Annual Advocacy Day event on April 8-9, 2019 on Capitol Hill in Washington, DC. Advocacy Day is... Continue Reading

SCDAA Hires New Communication Specialist

  • February 5, 2019
  • Justin Bost

We are equally pleased to report that Justin Bost has been assigned as Communications Specialist in support of SCDAA communications and marketing efforts. From concept... Continue Reading

SCDAA Hires New Member Services Advisor

  • February 5, 2019
  • Justin Bost

Sickle Cell Disease Association of America, Inc. (SCDAA) is pleased to announce that Temidayo Makinde, MPA, CHES joins the National Staff as Member... Continue Reading

2019 Annual Health Summit & Legislative Day

  • January 30, 2019
  • Justin Bost

Join Family Voices of California at the 2019 Annual Health Summit & Legislative Day, on March 10-12, 2019, to hear from experts and... Continue Reading

Emmaus Life Sciences Launches Its Commercial Co-Payment Assistance Program for Endari™

  • January 28, 2019
  • Justin Bost

TORRANCE, Calif., Jan. 28, 2019 /PRNewswire/ — Emmaus Life Sciences, Inc. (Emmaus), a leader in sickle cell disease treatment, announced today that... Continue Reading

WEBINAR TODAY: Introducing the Blueprint for Complex Care: Opportunities to Advance the Field

  • January 22, 2019
  • Justin Bost

Introducing the Blueprint for Complex Care: Opportunities to Advance the Field WEBINAR Date: January 22, 2019 Time: 2:00 pm- 3:00 pm... Continue Reading

ASGCT Society Patient Education Program

  • January 18, 2019
  • Justin Bost

The American Society of Gene & Cell Therapy (ASGCT) is proud to announce the first release of the Society’s Patient Education program, a new initiative... Continue Reading

47th Annual National Convention Call for Abstracts

  • January 18, 2019
  • Justin Bost

If you are you a researcher, community-based member organization, physician, nurse, social worker or someone working on behalf of people with... Continue Reading

47th Annual National Convention Theme Announced

  • January 18, 2019
  • Justin Bost

Sickle Cell Disease Association of America, Inc. is pleased to announce the theme for the 47th Annual National Convention: Sickle Cell Community... Continue Reading

SCDAA Hires New Director of Development & Special Initiatives

  • January 9, 2019
  • Justin Bost

Baltimore City native, Gary Bonner, will serve as the Director of Development & Special Initiatives. In this capacity, Bonner will oversee SCDAA’s national... Continue Reading

SCDAA Hires New Care Coordinator

  • January 9, 2019
  • Justin Bost

Tiffany Scott will serve as SCDAA’s Care Coordinator for the Health Resources Services Administration (HRSA) grant-funded Newborn Screening Follow-up Program. In... Continue Reading

CRISPR Therapeutics and Vertex Announce FDA Fast Track Designation for CTX001 for the Treatment of Sickle Cell Disease

  • January 4, 2019
  • Justin Bost

CRISPR Therapeutics and Vertex Pharmaceuticals Incorporated today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation... Continue Reading

Happy Holidays from SCDAA!

  • December 24, 2018
  • Justin Bost

The Board of Directors and the staff of the Sickle Cell Disease Association of America, Inc. wish you and your families a safe... Continue Reading

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