In 2020, SCDAA’s Medical and Research Advisory Committee (MARAC) was formed to address community concerns about COVID-19. Since then, MARAC’s team of acclaimed sickle cell experts have provided important guidance on topics like gene therapy, vaccinations, infectious diseases and more. MARAC’s global reach helps inform sickle cell warriors, caregivers and providers across the world.
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Dr. Edward Donnell Ivy
Chief Medical Officer -
Dr. Crawford Strunk
Vice Chief Medical Officer
MARAC Encourages Clinical Research Studies
The Sickle Cell Disease Association of America (SCDAA) Medical and Research Advisory Committee (MARAC) believes that progress in sickle cell disease... Continue Reading
MARAC Advisory Statement: Immunizations
August is National Immunization Awareness Month. What does that mean for individuals with sickle cell disease (SCD)? The Big Picture from... Continue Reading
MARAC Advisory Statement: Monkeypox
July 20 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of the news... Continue Reading
MARAC Advisory: COVID-19 and Sickle Cell Disease
March 2022 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee notes that news about COVID-19 continues... Continue Reading
MARAC Advisory Statement: Update About COVID-19
December 23, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee reminds the sickle cell community... Continue Reading
SCDAA News Advisory: Partial Hold on Gene Therapy Trial
On December 20, the FDA placed a partial hold on bluebird bio’s clinical program for lovotibeglogene autotemcel (lovo-cel) gene therapy, temporarily... Continue Reading
MARAC Advisory Statement Update About COVID-19 Vaccines
September 24, 2021 — News about COVID-19 continues to move quickly as we weather the pandemic. The Sickle Cell Disease Association... Continue Reading
MARAC Issues Updated COVID-19 Guidance
August 26, 2021 – The Sickle Cell Disease Association of America Medical and Research Advisory Committee has released two statements with... Continue Reading
MARAC Statement on Gene Therapy & Bone Marrow Therapies
Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other... Continue Reading
Temporary Suspension of Clinical Trials
March 1, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of... Continue Reading