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News

MARAC Statement: Pfizer Inclacumab Announcement

  • August 15, 2025
  • Emma Day

August 15, 2025  – In a statement issued today, Pfizer announced the results of their Phase 3 THRIVE-131 study evaluating inclacumab.... Continue Reading

SCDAA’s CHW Training Program Accredited by Maryland

  • August 5, 2025
  • Emma Day

Exciting News: the Maryland Department of Health has officially accredited SCDAA’s Community Health Worker Training! This accolade will allow our program... Continue Reading

In Memory of James E. Rawlings

  • May 28, 2025
  • Emma Day

With great sadness, SCDAA shares the news of the passing of James E. Rawlings, president and CEO of Michelle’s House (SCDAA,... Continue Reading

Black History Month 2025: Dr. Charles F. Whitten

  • February 7, 2025
  • Emma Day

Our first #SCDHistoryHighlight for Black History Month brings attention to the life and work of SCDAA co-founder Dr. Charles F. Whitten. Dr.... Continue Reading

SCDAA Statement on Recent Natural Disasters

  • January 13, 2025
  • Emma Day

SCDAA stands in solidarity with the warriors, advocates and community-based organizations who have been recently affected by natural disasters, including the... Continue Reading

SCDAA names board officers

  • November 20, 2024
  • Emma Day

The Sickle Cell Disease Association of America Inc., a national nonprofit membership organization that advocates for people affected by sickle cell... Continue Reading

MARAC Statement: Pfizer’s Voxelotor (Oxbryta®) Withdrawal

  • September 28, 2024
  • Emma Day

SCDAA Medical and Research Advisory Committee (MARAC) Statement: Pfizer’s Voxelotor (Oxbryta®) Withdrawal 9/27/24 What is the news? Pfizer announced the withdrawal... Continue Reading

Sickle Cell Disease is Not a Joke

  • December 18, 2023
  • Emma Day

This weekend’s Saturday Night Live skit about the recent historic approvals of potentially curative gene therapies for sickle cell disease is... Continue Reading

SCDAA Statement About Gene Therapy Approval

  • December 8, 2023
  • Emma Day

On Dec. 8, 2023, the Food and Drug Administration (FDA) approved two cell-based gene therapies for sickle cell disease (SCD), Casgevy... Continue Reading

Gene Therapy is Approved!

  • December 8, 2023
  • Emma Day

We are very excited to share that today, Dec. 8, the Food and Drug Administration approved two gene therapies to treat... Continue Reading