Statement from SCDAA MARAC
February 16, 2021 – We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical... Continue Reading
MARAC Advisory Statement: COVID-19 Vaccines
Download the MARAC Alert | Download Spanish Translation | Download French Translation December 14, 2020 – News is evolving rapidly about... Continue Reading
Sickle Cell Disease Association of America and Aruvant Sciences Forge New Partnership to Educate Around Gene Therapy
The Sickle Cell Disease Association of America (SCDAA) and Aruvant Sciences are proud to announce a new partnership to create educational... Continue Reading
Sickle Cell Disease Association holds 48th annual national convention virtually
Sickle Cell Disease Association of America will hold its 48th annual national convention virtually this year from Tuesday, Oct. 13, through... Continue Reading
Sickle Cell Disease Association of America Partners with HealthWell Foundation
New Fund Launches to Provide Financial Assistance to People with Sickle Cell Disease Copayment and Premium Assistance Now Available (April 15,... Continue Reading
NEW – Sickle Cell Disease and COVID-19: Provider Advisory
Download Provider Advisory Download Sub-Saharan African Provider Advisory An Outline to Decrease Burden and Minimize Morbidity This document will be updated... Continue Reading
NEW – Health Alert for People with Sickle Cell Disease and their Caregivers
DOWNLOAD PATIENT PDF (Spanish Version) DOWNLOAD PATIENT SUB-SAHARAN AFRICAN PDF SHOW THIS TO YOUR MEDICAL PROVIDERS TO HELP THEM HELP... Continue Reading
ASH and FDA Unveil New Recommendations to Guide Clinical Development of Sickle Cell Disease Therapies
Joint FDA/ASH Led Initiative Highlights Importance of Using Patient Reported Outcomes and Biomarkers in Clinical Trials to Advance SCD Therapies (WASHINGTON,... Continue Reading
GBT’s Oxbryta™ (voxelotor) tablets is approved for the treatment of sickle cell disease
Oxbryta™ (voxelotor) tablets Now Approved On behalf of GBT, we are happy to share that Oxbryta (pronounced ox-brye-ta) is now approved... Continue Reading
CRISPR Therapeutics and Vertex Announce Positive Safety and Efficacy Data
Nov 19, 2019 CRISPR Therapeutics and Vertex Announce Positive Safety and Efficacy Data From First Two Patients Treated With Investigational CRISPR/Cas9... Continue Reading