In Memory of Monica Rockwell
It is with great sadness that SCDAA shares the news of the passing of Monica Rockwell, executive director of SWGA Sickle... Continue Reading
SCDAA promotes Kevin Amado Jr.
The Sickle Cell Disease Association of America Inc., a national nonprofit membership organization that advocates for people affected by sickle cell... Continue Reading
The Nod to “Naz” Exhibit
During our 50th Annual National Convention in 2023, SCDAA was proud to exhibit the artwork of Hertz Nazaire at a pop-up... Continue Reading
CMO Speaks: Cyberattacks on Health Care Companies
Welcome to CMO Speaks, a blog featuring the voices of SCDAA’s clinical leadership team. This article was written by Dr. Lewis... Continue Reading
SCDAA Joins the IGT Patient Advocacy Advisory Council
SCDAA is pleased to announce that we have joined the Insitute for Gene Therapies (IGT) Patient Advocacy Advisory Council. IGT advocates... Continue Reading
15K in a Day for Rare Disease Day 2024
HELP US REACH OUR GOAL – DONATE TODAY Did you know that February 29 is Rare Disease Day? This important event... Continue Reading
CMMI Announces the Cell and Gene Therapy Access Model
Today, the Centers for Medicare and Medicaid Innovation (CMMI) announced the launch of their new Cell and Gene Therapy Access Model,... Continue Reading
Gene Therapy: What You Need to Know (Warrior FAQs)
Download and print this statement. Two gene therapies were recently approved by the Food and Drug Administration (FDA) to treat sickle... Continue Reading
SCDAA Statement on Exa-cel Gene Therapy
On October 31, 2023, the Food and Drug Administration is poised to make a landmark decision about exagamglogene autotemcel (exa-cel) gene... Continue Reading
CDC SCD Pregnancy Fact Sheets
Learn more about how to stay healthy leading up to, during and after a pregnancy with these newly developed fact sheets... Continue Reading