Welcome to the
Sickle Cell Disease
Association of America, Inc.

We serve as the national voice for sickle cell disease working to resolve issues surrounding this rare disease and sickle cell trait. Since 1972, our organization has been on the forefront of improving the quality of health, life and services for individuals, families and communities affected by this rare disease and related conditions. Our 55+ member organizations span 30 states.

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  • Sickle Cell News

  • MARAC Statement: Pfizer Inclacumab Announcement

    In a statement issued today, Pfizer announced the results of their Phase 3 THRIVE-131 study evaluating inclacumab. Although inclacumab was generally well tolerated in THRIVE-131, the study results concluded that inclacumab “did not meet its.....

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  • SCDAA’s CHW Training Program Accredited by Maryland

    Exciting News: the Maryland Department of Health has officially accredited SCDAA’s Community Health Worker Training! This accolade will allow our program to have an even bigger impact in the state. Students who have successfully completed.....

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  • P.O.W.E.R. CHW Award Nominations are Now Open!

    Each year during the SCDAA Annual National Convention, we recognize the amazing work performed by community health workers (CHWs) with the SCDAA P.O.W.E.R. CHW Award......

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  • CMS Expands Access to the CGT Access Model

    On July 15, 2025, the Centers for Medicare & Medicaid Services (CMS) announced expansions to the Cell and Gene Therapy (CGT) Access Model......

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Data & Statistics

300,000+

Babies born internationally each year with SCD

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1 in 13

African-Americans have Sickle Cell Trait (SCT)

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100,000

People in the United States have sickle cell disease (SCD)

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1 in 350

Black Americans have sickle cell disease (SCD)

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  • National Program Initiatives

  • SCD C.A.R.E.S. Consortium

    The mission of this initiative is to raise awareness about the importance of clinical trials and why it’s beneficial for sickle cell warriors to participate in them. The Sickle Cell […]

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  • Advocacy

    Sickle Cell Disease Association of America, Inc. (SCDAA) actively works with legislators and regulators at both the state and federal levels to advance policies that will maximize the quality of life

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  • CHW Training

    If you have a passion for community health or you have been personally affected by SCD, SCDAA encourages you to apply for community health worker (CHW) training. Our program offers comprehensive online self-paced skills training and

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