Sickle Cell Disease Association of America, Inc. (SCDAA) is the leader in promoting and advancing initiatives focused on people affected by sickle cell conditions worldwide. For 50 years, SCDAA and its 50-plus member organizations have demonstrated how community-based organizations can work as partners with medical facilities and local and state government agencies to pursue national health care objectives. To be added to SCDAA’s press release distribution list, contact Emma Day at eday@sicklecelldisease.org.
Researchers are trialing lab-grown blood transfusions: What to know
– Medical News Today (November 11, 2022)
Prioritizing Sickle Cell Disease
– American Academy of Pediatrics (September 20, 2022)
Preventing sickle cell anemia complications in children
– Centers for Disease Control and Prevention Vital Signs (September 20, 2022)
Sickle Cell Disease and Social Security
– Social Security Matters (September 15, 2022)
New treatments are offering hope to sickle cell disease patients
– WAMU (August 16, 2022)
Regina Hartfield: NORD recognizes SCDAA for leadership
– HCP Live (May 14, 2022)
Sickle Cell Disease Association of America arrives at 50th anniversary
– The Baltimore Sun (February 8, 2022)
How do you find a clinical trial?
– CSL Behring (January 25, 2022)
Edward Ivy, MD, MPH: A Comprehensive Perspective on Sickle Cell Disease
– HCP Live (January 18, 2022)
Regina Hartfield is now the president of SCDAA
– HCP Live (January 14, 2022)
Q&A with new CEO of the SCDAA, Regina Hartfield
– Sickle Cell Disease News (December 28, 2021)
Gene therapy may help cure sickle cell disease, study says
– HealthDay News (December 14, 2021)
Sickle Cell Disease Association of America Launches User-Friendly Clinical Trial Finder
– Genetic Engineering & Biotechnology News (October 15, 2021)
New partnership aims to save lives, spread awareness for sickle cell disease
– WBALTV (September 29, 2021)
Pain That’s Real, But Not Believed: Spreading Awareness of Sickle Cell Disease
– NBCLX (September 29, 2021)
What is Sickle Cell Disease?
– U.S. News & World Report (September 20, 2021)
Could Gene Therapy Cure Sickle Cell Disease? Two New Studies Raise Hopes
– HealthDay (December 5, 2020)
Lives with Sickle Cell Disease Matter
– National Black Nurses Association Summer 2020 Newsletter
Fears about COVID-19 are complicating care for patients with sickle cell disease
– STAT (September 17, 2020)
US approves new drug to manage sickle cell disease
– APNews.com (November 15, 2019)
Bipartisan Bill Aimed at Fighting Sickle Cell Disease Signed into Law by Trump
– NBCNews.com (December 19, 2018)
Gene Therapies Could Transform the Treatment of Sickle Cell Disease
– Washington Post (December 3, 2018)
Madison w/ Beverly Francis-Gibson
– Joe Madison the Black Eagle (November 21, 2018)
Legislation & Advocacy Efforts Needed in the Fight Against Sickle Cell Disease
– Rare Disease Report (October 18, 2018)
Sickle Cell Disease Association of America, Inc., the Sickle Cell Foundation of Georgia, Inc., and the American Red Cross partner on national blood drives initiative
– PR Newswire (October 10, 2018)
Sickle Cell Disease Group Launches Registry for Oft-Ignored Patients
– Associations Now (June 27, 2018 )
Sickle Cell Disease Association and Emmaus Partner to Increase Education, Awareness
– Sickle Cell Anemia News (June 26, 2018)
Sickle Cell Disease Association of America, Inc. Partners With Emmaus Life Sciences, Inc.
– Business Wire (June 19, 2018)
Joining Hands: SCDAA and Emmaus Medical Partner to Fight Sickle Cell Disease
– Rare Disease Report (June 19, 2018)
Sickle Cell Disease Association of America, Inc. Partners With Emmaus Life Sciences, Inc.
– Baltimore Business Journals (June 19, 2018)
Sickle Cell Draws Multiple Challenges to the Surface
– American Association of Medical Assistants (May/June 2018)
Sickle Cell Groups, Pfizer Work to Bring Black Americans Into Clinical Trials
– Sickle Cell Anemia News (May 3, 2018)
Terrific Teens (& Fabulous Families) – Stories of Resilience, Love and Creativity When Living with Sickle Cell Disease
– Sickle Cell Information Center (March 2018)
Sickle Cell Disease Association Announces National Child Ambassador
– AfroPhilly.com (November 13, 2017)
New Poll Highlights Ignorance About Sickle Cell Disease
– Baltimore Afro Newspaper (October 5, 2017)