Watch
SCDAA Medical Research & Advisory Committee
- Clinical Trials
- Immunizations
- Monkeypox
- Gene Therapy and Bone Marrow Therapy
- COVID-19 Health Alert for Patients and Caregivers
- COVID-19 Provider Advisory
- COVID-19 Vaccines
COVID-19 Resources
- VAX FACTS: Real Talk About Sickle Cell & the COVID-19 Vaccine
- Greater Than COVID – The Conversation
- COVID-19 Vaccination Toolkits
- COVID-19 Toolkit for Older Adults & People at Higher Risk
- COVID-19 Vaccine
- COVID-19 CDC CBO Slide Deck
Surveys & Studies
Disability Issues
- Community for Accredited Online Schools
- Employment of People with Disabilities
- National Council on Disability
Educational Materials
- 2020 Report Card on the State of Sickle Cell Disease
- Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action
- Be The Match Patient Support Center
- Be the Spark – Sickle Cell Disease Education Website
- Diverse Blood Donation Facts
- CDC Materials and Multimedia
- CDC SCD Pregnancy Fact Sheets
- CDC “Steps to Better Health for People with Sickle Cell Disease” Toolkit
- Checklist for SCD Patients Presenting to the Emergency Department During the Pandemic
- Gene Therapy Town Hall Infographic
- Gene Therapy Town Hall Recording
- KNOW & TELL: SCT and RMC Resource
- NIH July 2021 Workshop on SCD Recordings
- NIH NHLBI Sickle Cell Disease Fact Sheet (English)
- NIH NHLBI Sickle Cell Disease Fact Sheet (Spanish)
- oneSCDVoice
- Pediatric-to-Adult Health Care Transition Family Toolkit
- The Sickle Cell Disease Council For Change Releases its first report: Improving Vaso-occlusive Crisis Management
- Sickle Cell Books from Hilton Publishing
- Talking with Doctors Training
Medical Links
- SCDAA Sickle Cell Disease Educational Information Repository
- American Society of Hematology
- Centers for Disease Control
- Emory University Sickle Cell Information Center
- International Alliance for Pediatric Stroke
- National Foundation for Transplants
- National Marrow Donor Program
- National Organization for Rare Disorders
- U.S. Pain Foundation
- Your Genes, Your Health