September is National Sickle Cell Awareness Month, designated by Congress to help focus attention on the need for research and treatment of sickle cell disease. Read the President’s Proclamation here.

SCDAA’s theme for this year is Sickle Cell Matters. You can share our Awareness Month Flyer and Myths & Facts Sheet as part of your awareness efforts or join SCDAA at one of the many great events to support sickle cell awareness! In addition, our press kit with material developed for you to share with news media can be found here.

We encourage everyone to be a part of this national effort to increase awareness about sickle cell disease and sickle cell trait during the month of September. Individuals and organizations can join our efforts to bring attention to sickle cell disease by engaging elected officials for proclamations, hosting awareness events, distributing educational information to dispel the myths about sickle cell disease, and lighting public spaces, buildings and landmarks red!

Join SCDAA at an Event 

SCDAA encourages you to join us at these great events and activities during Sickle Cell Awareness month:

September 1: Sickle Cell Association of Houston to hold Houston City Hall Lights the Sky for Sickle Cell Association of Houston for Sickle Cell Disease
September 3: Children’s Sickle Cell Foundation, Inc. to hold Sickle Cell Disease Town Hall: COVID-19 and SCD Health Disparities
September 3: Conversation with Women in the Sickle Cell Community
September 7: Falling Angels Sickle Cell to hold Mental Health Zoom
September 9: Top Ladies of Distinction: Town Hall on Sickle Cell with Dr. Biree Andemariam, Chief Medical Officer of SCDAA
September 10: South Central PA Sickle Cell Council to hold “Sickle Cell Matters” webcast on Facebook Live
September 12: Citizens For Quality Sickle Cell Care, Northern CT to hold CQSCC Sickle Cell Strong Walk
September 15:  GBT and SCDAA Therapeutics Conference
September 15:  South Central PA Sickle Cell Council to hold “Sickle Cell Matters” webcast on Facebook Live
September 16: Children’s Sickle Cell Foundation, Inc. to hold Living Well with Sickle Cell Family Research Summit
September 16 & 17: PCORI Annual Meeting
September 17-19: 12th Annual Sickle Cell Disease Educational Seminar
September 18: Surviving & Thriving after Gene Therapy a Clinical Trial Virtual Forum
September 19: Sickle Cell Disease Association of America, Michigan Chapter to hold Sickle Cell Matters Virtual Walk featuring the Sickle Slide
September 21-25: SCDAA Twitter Party
September 22: South Central PA Sickle Cell Council to hold “Sickle Cell Matters” webcast on Facebook Live
September 23: Transforming Sickle Cell Disease Care Through Transplantation and Other Options Webinar
September 23-25: FSCDR Symposium
September 23-25: ASGCT Policy Summit
September 24-25: Foundation for Women and Girls Conference
September 25: 2020 Indiana Sickle Cell Conference “Sickle Cell Trait: Taking a Closer Look”
September 26: Greater Boston Sickle Cell Disease Association to hold Virtual Walk for Sickle Cell Disease
September 26-27: 2020 8th James Faucett III Virtual Sickle Cell Awareness 5K Run/Walk
September 29: South Central PA Sickle Cell Council to hold “Sickle Cell Matters” webcast on Facebook Live
September 29: 15th annual Rockin’ the Red

October 13-17: SCDAA Annual Convention

Other events:

Twitter Party

Join us during the week of September 21 to share victories and other exciting information about all of the latest happenings in the sickle cell community. You can participate by sharing your posts using the hashtag #SickleCellMatters on Monday 9/21, Wednesday 9/23 and Friday 9/25 from 12:30-1:30 p.m. We will share our collective posts for a time of sharing, learning and celebrating. Make sure to share this event on your Twitter, Facebook and Instagram pages and follow us to stay up-to-date on sickle cell news! View the flyer to learn more.

Click here to register for the Twitter Party.

Donate Blood

Be a sickle cell fighter by making an appointment to give blood by downloading the American
Red Cross Blood Donor App, visiting, calling 1-800-RED CROSS (1-800-
733-2767) or enabling the Blood Donor Skill on any Alexa Echo device.

Spread the Word on Social Media

We invite organizations to collaborate with us, including advocacy organizations, corporate and federal partners, to use the hashtags:


Please tag SCDAA in your social media posts so we can share your events and happenings during the month of September!

Share Our Flyer and Myths and Facts Sheet

Register for the Convention

SCDAA’s Annual National Convention is a four-day conference designed to address the multi-factorial aspects of sickle cell disease (SCD) and sickle cell trait (SCT). Join us!