Celebrating 50 Years of Progress: Join the Journey Forward

For more than half a century, the Sickle Cell Disease Association of America, Inc. (SCDAA) has been a driving force in the fight against sickle cell disease – igniting hope, spreading awareness and supporting individuals and their caregivers, affected by this condition.

Now, we are focused on the next phase of our journey and creating an even brighter future for those we support.


Welcome to 50 Years Forward

“50 Years Forward” is much more than a theme; it’s a celebration of progress! We’ve come a long way, but our journey is far from over. Our organization is entering into a new era marked by profound change, groundbreaking innovation and the revolutionary empowerment of our community.

Empowering Lives: Our tightly knit community of sickle cell disease member organizations provides unparalleled support, guiding individuals with sickle cell disease, caregivers and stakeholders toward a brighter future.

SCDAA has 50+ member organizations that serve the sickle cell community with direct services, advocacy and awareness programs. We value the work of our community-based organizations, and we work collaboratively across the country to affect positive change at the national, state and local levels.

Find a Member Organization


Igniting Change: With educational workshops, awareness campaigns and advocacy, SCDAA and its member organizations aren’t just talking about change – we’re making it happen.

Stories of Courage


Pioneering Research: We’re not just dreaming; we’re championing research that’s changing lives and getting us closer to a universal cure.

SCDAA actively promotes basic and translational research. Basic research is the foundational exploration of the fundamental elements underlying sickle cell disease. It’s about understanding the intricacies of the disease at a molecular and cellular level. Translational research, on the other hand, bridges the gap between these foundational insights and their practical application in clinical settings. It’s the crucial link transforming scientific knowledge into tangible advancements for patients. In both of these areas, significant and exciting progress is being made and have led us to recent historic – and expensive – breakthroughs.

Learn more about recent research breakthroughs


What’s Next?

We believe that each person’s unique story, experiences and insights are invaluable in shaping our future. Not only are we looking forward to the next 50 years of research, innovation and solutions for sickle cell disease, we are looking forward to the next 50 years of partnership, support and community with advocates and donors who believe in the mission of the SCDAA. As we move forward to a brighter future, we invite you to join us on our journey.

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Step into the future with the Sickle Cell Disease Association of America, Inc.