The National Sickle Cell Advocacy Network (NSCAN) is a national network of patients and families looking to advocate, educate and help people living with or who are affected by sickle cell disease. We know that there is immeasurable strength in numbers. Collectively, our goal is to ensure that those affected by sickle cell disease
know that they are not alone.
With the help from our community based organizations, we have created a strong network that includes caregivers, clinicians, stakeholders and experts. Sickle Cell Disease Association of America, Inc. seeks to increase its network to include more individuals that have the energy and drive to recruit others and increase advocacy and awareness within the sickle cell community!
The role of NSCAN members are the following:
Promote Awareness for the importance offinding an affordable cure to those sufferingwith Sickle Cell Disease
Inspire community support by keeping the publicinformed of SCDAA programs, news and events
Offer assistance in strengthening the community.
Navigate valuable information to other networksdedicated to continuous medical, program, advocacy andresearch
Educate other Advocates, patients and families on theimportance of understanding the effects of Sickle CellDisease
Encourage legislative, community andcorporate advocacy for those consumers andfamilies affected by Sickle Cell Disease and;
Raise funds and/or awareness tofurther the mission of SCDAA’snational programs and efforts