SCDAA Statement: CMS Cell and Gene Therapy Access Model
Nearly one year ago, the Food and Drug Administration (FDA) approved two new gene therapies for the treatment of sickle cell... Continue Reading
SCDAA names board officers
The Sickle Cell Disease Association of America Inc., a national nonprofit membership organization that advocates for people affected by sickle cell... Continue Reading
MARAC Statement: Pfizer’s Voxelotor (Oxbryta®) Withdrawal
SCDAA Medical and Research Advisory Committee (MARAC) Statement: Pfizer’s Voxelotor (Oxbryta®) Withdrawal 9/27/24 What is the news? Pfizer announced the withdrawal... Continue Reading
Sickle Cell Awareness Month 2024
All across the country, our member organizations are hosting exciting events for Sickle Cell Awareness Month this September. Check out the... Continue Reading
CHW P.O.W.E.R Award
CLICK HERE TO LEARN MORE AND MAKE A NOMINATION Do you know a community health worker who exemplifies excellence and commitment... Continue Reading
MARAC Statement: Parvovirus B19, Fever and Urgent Care
MARAC Statement: Parvovirus B19, Fever and Urgent Care Aug. 13, 2024 – More infections with parvovirus B19, also known as “fifth... Continue Reading
WHO Publishes New Guidelines for SCD Management in Africa
The World Health Organization (WHO) recently published a comprehensive package of interventions for sickle cell disease management in Africa. The package... Continue Reading
SCDAA Statement: Know Your Rights in the ER
Know Your Rights in the Emergency Department – Biden Administration Releases New Guidance The Centers for Medicare & Medicaid Services (CMS)... Continue Reading
Statement on the Inclusion of DEI in Medical School Curriculum
SCDAA joins the National Medical Association, the American Medical Association, the American Association of Medical Colleges, and other groups, in advocating... Continue Reading
In Memory of Monica Rockwell
It is with great sadness that SCDAA shares the news of the passing of Monica Rockwell, executive director of SWGA Sickle... Continue Reading