Join Sickle Cell Disease Association of America, Inc. for its 2019 Advocacy Day as we advocate for those affected by sickle cell disease (SCD).

Click here to register today!

Click here to see where you can park in Washington, DC

Click here to see when you can board the shuttle at Gallaudet to get to the Metro subway.

Click here for Gallaudet Campus Map 

Click here for directions from Union Station (Metro) to the Rayburn Building for your meetings with legislators.

Click here to see the map of the Metro.

The host hotel for the event is the Kellogg Conference Center at Gallaudet University located at:

1800 Florida Ave., NE
Washington, DC 20002

The event will be held in Washington, DC from April 8-9, 2019 at the Kellogg Conference Hotel at Gallaudet University and on Capitol Hill. This year’s Advocacy Day campaign will focus on key legislative issues that are important to individuals living with SCD and their families, including promoting stable funding for research, better healthcare access, expanded programs, and increased education and awareness for the SCD community and programs throughout our nation. We look forward to an exciting event that will feature:

  •   Welcome Reception
  •   Advocacy Training
  •   Meet Legislative Champions
  •   Collaboration with Federal Partners

Advocacy Day plays a significant role in extending our outreach strategy to further engage elected officials on the multifactorial aspects of sickle cell disease, to share personal stories from individuals living with SCD, and to advocate for key legislation that would address research funding, community health responses, and improved treatment options.

The two-day event brings together individuals representing our 46 chapters, affiliates and supporters representing 35 states from across the country to meet with Members of Congress and staff members, and to connect with one another.

AGENDA

APRIL 8th
6:00pm 
Registration Begins on the first floor in Ballroom ABC
Kellogg Conference Hotel at Gallaudet University
800 Florida Avenue NE, Washington, DC 20002-3695
6:30pm-8:30pm
Welcome Reception, Program & Distribution of Legislative Materials
APRIL 9th
Capitol Hill Visits – We will take a group photo at 9:30am in front of Rayburn House Office Building, 45 Independence, Avenue, SW, Washington, DC 20515. Wear red, comfortable shoes and your lapel pins that will be provided to you during registration.
  • Pictures at 9:30 in front of Rayburn House Office Building — 45 Independence, Avenue, SW, Washington, DC 20515
  • Wear comfy shoes
  • Wear your lapel pins that will be provided during registration

For more information or questions, please contact SCDAA Member Services Advisor Temi Makinde at tmakinde@sicklecelldisease.org or call 410-528-1555.