The first-ever National SCD Policy Forum was held on March 21 and 22, 2023!  Sickle cell advocates from across the country came together for this two-day federal advocacy event hosted by the Sickle Cell Disease Association of America (SCDAA), Sick Cells and the Sickle Cell Community Consortium. 

Thanks to the amazing advocates who joined us on March 22, this Virtual Hill Day resulted in over 100 advocates sharing their stories, 148 meetings on the Hill and 29 states represented. These advocates asked for increased funding for the HRSA Sickle Cell Disease Treatment Demonstration and the CDC SCD Data Collection Program. They also requested that offices co-sponsor the Sickle Cell Disease Comprehensive Care Act.

We are grateful to the sponsors who supported this event:

  • Gold Level: bluebird bio
  • Silver Level: Vertex Pharmaceuticals
  • Supporter Level: Editas Medicine and Pfizer, Inc.

Read the 2023 National SCD Policy Forum Report.