Advocacy Alert: Save the Sickle Cell Data Collection Program
Last week, the Trump administration announced drastic changes and reductions to federal health programs that support the sickle cell disease community.... Continue Reading
SCDAA Statement on the Measles Outbreak
SCDAA is aware of and monitoring the measles outbreaks that have been reported in several states. There is a fair amount... Continue Reading
Black History Month: Our Current Member Organizations
As Black History Month ends, we would like to look to the future for our final #SCDHistoryHighlight at the amazing work... Continue Reading
Black History Month: National Sickle Cell Anemia Control Act
After our founding, one of SCDAA’s earliest goals was to ensure the National Sickle Cell Anemia Control Act of 1972 was... Continue Reading
Black History Month: Our Early Member Organizations
Last week, we learned about the origins of the Sickle Cell Disease Association of America, Inc. (SCDAA) and the vision for... Continue Reading
Black History Month 2025: Dr. Charles F. Whitten
Our first #SCDHistoryHighlight for Black History Month brings attention to the life and work of SCDAA co-founder Dr. Charles F. Whitten. Dr.... Continue Reading
MARAC Statement: ASH Report on Exercise and SCT Crisis Risk
Feb. 5, 2025 – On January 30, 2025, the American Society of Hematology (ASH) published a report that found no evidence... Continue Reading
Editas Medicine Announces Strategic Transition
Editas Medicine recently announced that they will be making a strategic transition to a in vivo gene editing company. The company... Continue Reading
SCDAA Statement on Recent Natural Disasters
SCDAA stands in solidarity with the warriors, advocates and community-based organizations who have been recently affected by natural disasters, including the... Continue Reading
In Memory of Frank Reddick
It is with great sadness that SCDAA shares the news of the passing of Frank Reddick on Dec. 23, 2024. Frank... Continue Reading