GBT and Sickle Cell Disease Association of America to Host 10th Annual Sickle Cell Disease (SCD) Therapeutics Conference
Centers for Medicare & Medicaid Services (CMS) Administrator Chiquita Brooks-LaSure to deliver keynote SOUTH SAN FRANCISCO, Calif., and BALTIMORE – September... Continue Reading
MARAC Issues Updated COVID-19 Guidance
August 26, 2021 – The Sickle Cell Disease Association of America Medical and Research Advisory Committee has released two statements with... Continue Reading
SCDAA names government relations manager
Sickle Cell Disease Association of America named John Otsuki as government relations manager. Otsuki brings experience in regulatory and legislative affairs,... Continue Reading
Sickle Cell Disease Association of America announces new teen ambassador
Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected... Continue Reading
The Kidney Cancer Association and SCDAA launch KNOW & TELL
New campaign to raise awareness about connection between sickle cell trait and deadly form of kidney cancer. The Kidney Cancer Association... Continue Reading
MARAC Statement on Gene Therapy & Bone Marrow Therapies
Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other... Continue Reading
GBT and SCDAA Kick Off “Lift Every Voice to Shine the Light on Sickle Cell”
May 04, 2021 at 8:00 AM EDT SOUTH SAN FRANCISCO, Calif. and HANOVER, Md., May 04, 2021 (GLOBE NEWSWIRE) —In recognition... Continue Reading
SCDAA partners with Sickle Cell Community Consortium
Sickle Cell Disease Association of America partnered with the Sickle Cell Community Consortium to advocate for legislation benefiting people with sickle... Continue Reading
SCDAA Launches New Educational Materials to Support Children’s Blood Transfusion
Sickle Cell Disease Association of America, Inc. (SCDAA) and Hemanext Inc., a privately held medical technology company dedicated to improving the... Continue Reading
SCDAA names government relations manager
Sickle Cell Disease Association of America named Nathan Parsons as government relations manager. Parsons brings experience in politics, policy and legislation.... Continue Reading
SCDAA names program manager
Sickle Cell Disease Association of America (SCDAA) named Briana Hunter program manager. In her position, Hunter oversees the association’s Newborn Screening... Continue Reading
Temporary Suspension of Clinical Trials
March 1, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of... Continue Reading
Statement from SCDAA MARAC
February 16, 2021 – We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical... Continue Reading
MARAC Advisory Statement: COVID-19 Vaccines
Download the MARAC Alert | Download Spanish Translation | Download French Translation December 14, 2020 – News is evolving rapidly about... Continue Reading
Sickle Cell Disease Association names leadership
Sickle Cell Disease Association of America named Dr. Lewis Hsu chief medical officer and JaKela Walker chair of the board of... Continue Reading