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News

NEW SCDAA CHAPTER MEMBERS

  • July 3, 2020
  • kwanh

SCDAA proudly announces the addition of two new members joining its ranks: Supporters of Families With Sickle Cell Disease, Inc., in Tulsa... Continue Reading

SCDAA Shines the Light on Sickle Cell

  • June 15, 2020
  • Burrell Jacqueline

SCDAA SHINES THE LIGHT ON SICKLE CELL Join SCDAA’s Twitter Party June 19, 2020 9 a.m. – 9 p.m. (June 15,... Continue Reading

MARAC Advisory Statement Regarding SCD Patients during the time of “Reopening” the U.S. Economy

  • April 30, 2020
  • kwanh

May 14, 2020 – On Thursday April 16, 2020, the U.S. Coronavirus Taskforce provided recommendations on reopening the economy, giving states... Continue Reading

SCDAA Adds Two New Member Organizations

  • April 20, 2020
  • kwanh

SCDAA is proud to welcome two new member organizations to its ranks, bringing its total number of chapters up to 48.... Continue Reading

Social Adjustments & Response to COVID-19

  • April 18, 2020
  • kwanh

SCDAA medical advisory and research committee shares advice to help with the COVID-19 status. Please click image to download and share.... Continue Reading

Sickle Cell Disease Association of America Partners with HealthWell Foundation

  • April 17, 2020
  • kwanh

New Fund Launches to Provide Financial Assistance to People with Sickle Cell Disease Copayment and Premium Assistance Now Available (April 15,... Continue Reading

Sickle Cell Disease Association of America Extends its COVID-19 Emergency Fundraiser

  • April 10, 2020
  • kwanh

The Need Continues to Grow The Sickle Cell Disease Association of America is extending its COVID-19 Emergency Fund Campaign to raise funds and... Continue Reading

SCDAA Receives $100,000 Donation from GBT

  • April 2, 2020
  • kwanh

Funds will be deployed to help SCDAA member organizations (April 2, 2020 – Hanover, MD)  Responding to the Sickle Cell Disease... Continue Reading

Sickle Cell Disease Association of America Aims to Raise $100,000 in 10 Days to Address Coronavirus

  • March 27, 2020
  • kwanh

Raising Money and Giving Grants to Member Organizations in the United States The Sickle Cell Disease Association of America has launched... Continue Reading

NEW – Sickle Cell Disease and COVID-19: Provider Advisory

  • March 18, 2020
  • kwanh

Download Provider Advisory Download Sub-Saharan African Provider Advisory An Outline to Decrease Burden and Minimize Morbidity This document will be updated... Continue Reading

NEW – Health Alert for People with Sickle Cell Disease and their Caregivers

  • March 17, 2020
  • kwanh

DOWNLOAD PATIENT PDF     (Spanish Version) DOWNLOAD PATIENT SUB-SAHARAN AFRICAN PDF SHOW THIS TO YOUR MEDICAL PROVIDERS TO HELP THEM HELP... Continue Reading

ASH and FDA Unveil New Recommendations to Guide Clinical Development of Sickle Cell Disease Therapies

  • December 13, 2019
  • Burrell Jacqueline

Joint FDA/ASH Led Initiative Highlights Importance of Using Patient Reported Outcomes and Biomarkers in Clinical Trials to Advance SCD Therapies (WASHINGTON,... Continue Reading

GBT’s Oxbryta™ (voxelotor) tablets is approved for the treatment of sickle cell disease

  • December 3, 2019
  • Burrell Jacqueline

Oxbryta™ (voxelotor) tablets Now Approved On behalf of GBT, we are happy to share that Oxbryta (pronounced ox-brye-ta) is now approved... Continue Reading

New Hope for a Sickle Cell Cure

  • December 2, 2019
  • Burrell Jacqueline

How gene therapy is helping children with this devastating disease. By Joy Harrington, Writer When Mr. and Mrs. Jones married and left... Continue Reading

FDA Approves Global Blood Therapeutics Sickle Cell Disease Drug

  • November 26, 2019
  • Burrell Jacqueline

(Reuters) – The U.S. Food and Drug Administration said on Monday it approved a drug from Global Blood Therapeutics Inc to... Continue Reading

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