Category Archives


SCDAA Receives $100,000 Donation from GBT

  • April 2, 2020
  • kwanh

Funds will be deployed to help SCDAA member organizations (April 2, 2020 – Hanover, MD)  Responding to the Sickle Cell Disease... Continue Reading

Sickle Cell Disease Association of America Aims to Raise $100,000 in 10 Days to Address Coronavirus

  • March 27, 2020
  • kwanh

Raising Money and Giving Grants to Member Organizations in the United States The Sickle Cell Disease Association of America has launched... Continue Reading

NEW – Sickle Cell Disease and COVID-19: Provider Advisory

  • March 18, 2020
  • kwanh

Download Provider Advisory Download Sub-Saharan African Provider Advisory An Outline to Decrease Burden and Minimize Morbidity March 24, 2020- Sickle cell... Continue Reading

NEW – Health Alert for Patients and Caregivers

  • March 17, 2020
  • kwanh

DOWNLOAD PATIENT PDF DOWNLOAD PATIENT SUB-SAHARAN AFRICAN PDF April 1, 2020 – COVID-19, the coronavirus disease of 2019 – also known as... Continue Reading

ASH and FDA Unveil New Recommendations to Guide Clinical Development of Sickle Cell Disease Therapies

  • December 13, 2019
  • Burrell Jacqueline

Joint FDA/ASH Led Initiative Highlights Importance of Using Patient Reported Outcomes and Biomarkers in Clinical Trials to Advance SCD Therapies (WASHINGTON,... Continue Reading

GBT’s Oxbryta™ (voxelotor) tablets is approved for the treatment of sickle cell disease

  • December 3, 2019
  • Burrell Jacqueline

Oxbryta™ (voxelotor) tablets Now Approved On behalf of GBT, we are happy to share that Oxbryta (pronounced ox-brye-ta) is now approved... Continue Reading

New Hope for a Sickle Cell Cure

  • December 2, 2019
  • Burrell Jacqueline

How gene therapy is helping children with this devastating disease. By Joy Harrington, Writer When Mr. and Mrs. Jones married and left... Continue Reading

FDA Approves Global Blood Therapeutics Sickle Cell Disease Drug

  • November 26, 2019
  • Burrell Jacqueline

(Reuters) – The U.S. Food and Drug Administration said on Monday it approved a drug from Global Blood Therapeutics Inc to... Continue Reading

CRISPR Therapeutics and Vertex Announce Positive Safety and Efficacy Data

  • November 19, 2019
  • Burrell Jacqueline

Nov 19, 2019 CRISPR Therapeutics and Vertex Announce Positive Safety and Efficacy Data From First Two Patients Treated With Investigational CRISPR/Cas9... Continue Reading

US approves new drug to manage sickle cell disease

  • November 18, 2019
  • Burrell Jacqueline

By LINDA A. JOHNSON | November 15, 2019 | U.S. regulators on Friday approved a new medicine that can help... Continue Reading

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