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News

GBT and Sickle Cell Disease Association of America to Host 10th Annual Sickle Cell Disease (SCD) Therapeutics Conference

  • September 8, 2021
  • Emma Day

Centers for Medicare & Medicaid Services (CMS) Administrator Chiquita Brooks-LaSure to deliver keynote SOUTH SAN FRANCISCO, Calif., and BALTIMORE – September... Continue Reading

MARAC Issues Updated COVID-19 Guidance

  • September 7, 2021
  • Emma Day

August 26, 2021 – The Sickle Cell Disease Association of America Medical and Research Advisory Committee has released two statements with... Continue Reading

SCDAA names government relations manager

  • August 12, 2021
  • Emma Day

Sickle Cell Disease Association of America named John Otsuki as government relations manager. Otsuki brings experience in regulatory and legislative affairs,... Continue Reading

Sickle Cell Disease Association of America announces new teen ambassador

  • July 19, 2021
  • Emma Day

Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected... Continue Reading

The Kidney Cancer Association and SCDAA launch KNOW & TELL

  • June 21, 2021
  • Emma Day

New campaign to raise awareness about connection between sickle cell trait and deadly form of kidney cancer. The Kidney Cancer Association... Continue Reading

MARAC Statement on Gene Therapy & Bone Marrow Therapies

  • May 15, 2021
  • Emma Day

Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other... Continue Reading

GBT and SCDAA Kick Off “Lift Every Voice to Shine the Light on Sickle Cell”

  • May 4, 2021
  • Emma Day

May 04, 2021 at 8:00 AM EDT SOUTH SAN FRANCISCO, Calif. and HANOVER, Md., May 04, 2021 (GLOBE NEWSWIRE) —In recognition... Continue Reading

SCDAA partners with Sickle Cell Community Consortium

  • April 28, 2021
  • Emma Day

Sickle Cell Disease Association of America partnered with the Sickle Cell Community Consortium to advocate for legislation benefiting people with sickle... Continue Reading

SCDAA Launches New Educational Materials to Support Children’s Blood Transfusion

  • April 1, 2021
  • Emma Day

Sickle Cell Disease Association of America, Inc. (SCDAA) and Hemanext Inc., a privately held medical technology company dedicated to improving the... Continue Reading

SCDAA names government relations manager

  • March 31, 2021
  • Emma Day

Sickle Cell Disease Association of America named Nathan Parsons as government relations manager. Parsons brings experience in politics, policy and legislation.... Continue Reading

SCDAA names program manager

  • March 23, 2021
  • Emma Day

Sickle Cell Disease Association of America (SCDAA) named Briana Hunter program manager. In her position, Hunter oversees the association’s Newborn Screening... Continue Reading

Temporary Suspension of Clinical Trials

  • March 2, 2021
  • Emma Day

  March 1, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of... Continue Reading

Statement from SCDAA MARAC

  • February 17, 2021
  • Emma Day

February 16, 2021 – We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical... Continue Reading

MARAC Advisory Statement: COVID-19 Vaccines

  • December 15, 2020
  • Emma Day

Download the MARAC Alert | Download Spanish Translation | Download French Translation December 14, 2020 – News is evolving rapidly about... Continue Reading

Sickle Cell Disease Association names leadership

  • November 6, 2020
  • Emma Day

Sickle Cell Disease Association of America named Dr. Lewis Hsu chief medical officer and JaKela Walker chair of the board of... Continue Reading

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