Category Archives


SCDAA promotes Kevin Amado Jr.

  • March 26, 2024
  • Emma Day

The Sickle Cell Disease Association of America Inc., a national nonprofit membership organization that advocates for people affected by sickle cell... Continue Reading

The Nod to “Naz” Exhibit

  • March 7, 2024
  • Emma Day

During our 50th Annual National Convention in 2023, SCDAA was proud to exhibit the artwork of Hertz Nazaire at a pop-up... Continue Reading

CMO Speaks: Cyberattacks on Health Care Companies

  • March 5, 2024
  • Emma Day

Welcome to CMO Speaks, a blog featuring the voices of SCDAA’s clinical leadership team. This article was written by Dr. Lewis... Continue Reading

SCDAA Joins the IGT Patient Advocacy Advisory Council

  • March 4, 2024
  • Emma Day

SCDAA is pleased to announce that we have joined the Insitute for Gene Therapies (IGT) Patient Advocacy Advisory Council. IGT advocates... Continue Reading

15K in a Day for Rare Disease Day 2024

  • February 23, 2024
  • Emma Day

HELP US REACH OUR GOAL – DONATE TODAY Did you know that February 29 is Rare Disease Day? This important event... Continue Reading

CMMI Announces the Cell and Gene Therapy Access Model

  • January 30, 2024
  • Emma Day

Today, the Centers for Medicare and Medicaid Innovation (CMMI) announced the launch of their new Cell and Gene Therapy Access Model,... Continue Reading

Gene Therapy: What You Need to Know (Warrior FAQs)

  • December 8, 2023
  • Emma Day

Download and print this statement. Two gene therapies were recently approved by the Food and Drug Administration (FDA) to treat sickle... Continue Reading

SCDAA Statement on Exa-cel Gene Therapy

  • October 26, 2023
  • Emma Day

On October 31, 2023, the Food and Drug Administration is poised to make a landmark decision about exagamglogene autotemcel (exa-cel) gene... Continue Reading

CDC SCD Pregnancy Fact Sheets

  • October 26, 2023
  • Emma Day

Learn more about how to stay healthy leading up to, during and after a pregnancy with these newly developed fact sheets... Continue Reading

In Memory of Dr. Lennette Benjamin

  • October 25, 2023
  • Emma Day

The Sickle Cell Disease Association of America, Inc., (SCDAA) is saddened to hear the news of the passing of Dr. Lennette... Continue Reading