SCDAA Statement on Exa-cel Gene Therapy
On October 31, 2023, the Food and Drug Administration is poised to make a landmark decision about exagamglogene autotemcel (exa-cel) gene... Continue Reading
CDC SCD Pregnancy Fact Sheets
Learn more about how to stay healthy leading up to, during and after a pregnancy with these newly developed fact sheets... Continue Reading
In Memory of Dr. Lennette Benjamin
The Sickle Cell Disease Association of America, Inc., (SCDAA) is saddened to hear the news of the passing of Dr. Lennette... Continue Reading
New Opiate Dosing Calculator for Health Care Providers
NEW RESOURCE AVAILABLE: This tool from the National Alliance of Sickle Cell Centers can help sickle cell providers make important decisions... Continue Reading
SCDAA and MedicAlert Foundation Launch Pilot Program
Leading Sickle Cell Organization and MedicAlert Foundation Launch Pilot Program to Improve Emergency Care During Sickle Cell Pain Crises Non-profits partner to... Continue Reading
Abstracts Accepted Until 11:59 p.m. PST
This morning, we were notified that some users experienced issues using our 2023 National Abstract Competition portal. This issue has been... Continue Reading
CMO Speaks: Gene Therapy for SCD (Part 1)
CMO Speaks is a blog featuring the voices of SCDAA’s clinical leadership team. Part 1 of our Gene Therapy series was... Continue Reading
June 19, 2023, is Officially Sickle Cell Awareness Day in Maryland!
Maryland Governor Wes Moore has signed a proclamation to make June 19, 2023, Sickle Cell Awareness Day! This recognition goes a... Continue Reading
SCDAA hires member coordinator
The Sickle Cell Disease Association of America, a national nonprofit membership organization that advocates for people affected by sickle cell disease,... Continue Reading
Women’s History Month: Dr. Marilyn Hughes Gaston
This #WomensHistoryMonth, we are highlighting prominent women who have made lasting contributions to the SCD community. #WomenInMedicine #WomensHistoryMonth Meet Dr. Marilyn... Continue Reading