Category Archives


SCDAA Statement on Exa-cel Gene Therapy

  • October 26, 2023
  • Emma Day

On October 31, 2023, the Food and Drug Administration is poised to make a landmark decision about exagamglogene autotemcel (exa-cel) gene... Continue Reading

CDC SCD Pregnancy Fact Sheets

  • October 26, 2023
  • Emma Day

Learn more about how to stay healthy leading up to, during and after a pregnancy with these newly developed fact sheets... Continue Reading

In Memory of Dr. Lennette Benjamin

  • October 25, 2023
  • Emma Day

The Sickle Cell Disease Association of America, Inc., (SCDAA) is saddened to hear the news of the passing of Dr. Lennette... Continue Reading

New Opiate Dosing Calculator for Health Care Providers

  • October 19, 2023
  • Emma Day

NEW RESOURCE AVAILABLE: This tool from the National Alliance of Sickle Cell Centers can help sickle cell providers make important decisions... Continue Reading

SCDAA and MedicAlert Foundation Launch Pilot Program

  • September 21, 2023
  • Emma Day

Leading Sickle Cell Organization and MedicAlert Foundation Launch Pilot Program to Improve Emergency Care During Sickle Cell Pain Crises Non-profits partner to... Continue Reading

Abstracts Accepted Until 11:59 p.m. PST

  • July 17, 2023
  • Emma Day

This morning, we were notified that some users experienced issues using our 2023 National Abstract Competition portal. This issue has been... Continue Reading

CMO Speaks: Gene Therapy for SCD (Part 1)

  • June 2, 2023
  • Emma Day

CMO Speaks is a blog featuring the voices of SCDAA’s clinical leadership team. Part 1 of our Gene Therapy series was... Continue Reading

June 19, 2023, is Officially Sickle Cell Awareness Day in Maryland!

  • April 6, 2023
  • Emma Day

Maryland Governor Wes Moore has signed a proclamation to make June 19, 2023, Sickle Cell Awareness Day! This recognition goes a... Continue Reading

SCDAA hires member coordinator

  • March 30, 2023
  • Emma Day

The Sickle Cell Disease Association of America, a national nonprofit membership organization that advocates for people affected by sickle cell disease,... Continue Reading

Women’s History Month: Dr. Marilyn Hughes Gaston

  • March 29, 2023
  • Emma Day

This #WomensHistoryMonth, we are highlighting prominent women who have made lasting contributions to the SCD community. #WomenInMedicine #WomensHistoryMonth  Meet Dr. Marilyn... Continue Reading