Category Archives


SCDAA’s Teen Ambassador Contest is Open!

  • April 8, 2021
  • emma

Could you be our next Teen Ambassador? SCDAA is searching for the newest members of our team to represent their generation... Continue Reading

SCDAA names government relations manager

  • March 31, 2021
  • emma

Sickle Cell Disease Association of America named Nathan Parsons as government relations manager. Parsons brings experience in politics, policy and legislation.... Continue Reading

Sickle Cell Disease Association of America names program manager

  • March 23, 2021
  • emma

Sickle Cell Disease Association of America (SCDAA) named Briana Hunter program manager. In her position, Hunter oversees the association’s Newborn Screening... Continue Reading

Temporary Suspension of Clinical Trials

  • March 2, 2021
  • emma

  March 1, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of... Continue Reading

Black History Month: Dr. Roland Scott

  • February 26, 2021
  • emma

For our final #SCDHistoryHighlight of Black History month, we are excited to reflect on the life and work of Dr. Roland... Continue Reading

Black History Month 2021: Dr. Angella Dorothea Ferguson

  • February 19, 2021
  • emma

We’re excited to continue our celebration of Black history this week by highlighting the life and work of Dr. Angella Dorothea Ferguson,... Continue Reading

Statement from SCDAA MARAC

  • February 17, 2021
  • emma

February 16, 2021 – We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical... Continue Reading

SCDAA Celebrates Black History Month 2021

  • February 5, 2021
  • emma

Sickle cell disease plays an important role in black history, and vice versa. This month, we will highlight African American sickle... Continue Reading

SCDAA promotes Kevin Amado Jr.

  • January 12, 2021
  • emma

Sickle Cell Disease Association of America promoted Kevin Amado Jr. to community impact and engagement manager. Amado joined the association last... Continue Reading

MARAC Advisory Statement: COVID-19 Vaccines

  • December 15, 2020
  • emma

Download the MARAC Alert | Download Spanish Translation | Download French Translation December 14, 2020 – News is evolving rapidly about... Continue Reading

A Health Note From Dr. Biree Andemariam, SCDAA Chief Medical Officer

  • March 13, 2020
  • kwanh

What You Need to Know About the Coronavirus (COVID-19) With COVID-19 on the forefront of nearly everyone’s minds, SCDAA wants to... Continue Reading

Novartis Adakveo approved by FDA for Sickle Cell Disease

  • November 16, 2019
  • Burrell Jacqueline

New Novartis medicine Adakveo® (crizanlizumab-tmca) approved by FDA to reduce frequency of pain crises in individuals living with sickle cell disease Sickle... Continue Reading

New Children’s Book Aims to Inspire Children with SCD

  • September 19, 2019
  • Burrell Jacqueline

Two health educators have written a children’s book about living with sickle cell disease (SCD). I’m No Different Than You tells... Continue Reading

SCDAA President and CEO Receives Award from National Association of Real Estate Brokers (NAREB)

  • September 16, 2019
  • Burrell Jacqueline

Sickle Cell Disease Association of America, Inc. (SCDAA) is proud to announce that SCDAA President and CEO Beverley Francis-Gibson was honored... Continue Reading

Donate Blood to Support Sickle Cell Patients

  • September 10, 2019
  • Burrell Jacqueline

September is Sickle Cell Awareness Month; Red Cross blood and platelet donations needed for patients This school year students battling sickle... Continue Reading

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