HCPLive® Announces Partnership With Sickle Cell Disease Association of America (SCDAA)
HCPLive® Announces Partnership With Sickle Cell Disease Association of America (SCDAA) SCDAA’s mission is to advocate for people affected by sickle... Continue Reading
SCDAA names government relations manager
Sickle Cell Disease Association of America named John Otsuki as government relations manager. Otsuki brings experience in regulatory and legislative affairs,... Continue Reading
Sickle Cell Disease Association of America announces new teen ambassador
Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected... Continue Reading
The Kidney Cancer Association and SCDAA launch KNOW & TELL
New campaign to raise awareness about connection between sickle cell trait and deadly form of kidney cancer. The Kidney Cancer Association... Continue Reading
The Hibiscus Study is Enrolling Volunteers
Study Title: An adaptive, randomized, placebo-controlled, double-blind, multi-center study of oral FT-4202, a pyruvate kinase activator, in patients with sickle cell... Continue Reading
Walk with the Stars to support Sickle Cell Disease Association of America
Sickle Cell Disease Association of America will hold the eighth annual Walk with the Stars fundraiser, where participating teams and individuals... Continue Reading
MARAC Statement on Gene Therapy & Bone Marrow Therapies
Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other... Continue Reading
GBT and SCDAA Kick Off “Lift Every Voice to Shine the Light on Sickle Cell”
May 04, 2021 at 8:00 AM EDT SOUTH SAN FRANCISCO, Calif. and HANOVER, Md., May 04, 2021 (GLOBE NEWSWIRE) —In recognition... Continue Reading
SCDAA partners with Sickle Cell Community Consortium
Sickle Cell Disease Association of America partnered with the Sickle Cell Community Consortium to advocate for legislation benefiting people with sickle... Continue Reading
SCDAA Launches New Educational Materials to Support Children’s Blood Transfusion
Sickle Cell Disease Association of America, Inc. (SCDAA) and Hemanext Inc., a privately held medical technology company dedicated to improving the... Continue Reading