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Blog

MARAC Advisory Statement: Immunizations

  • August 31, 2022
  • Emma Day

August is National Immunization Awareness Month. What does that mean for individuals with sickle cell disease (SCD)? The Big Picture from... Continue Reading

Tools for Sickle Cell Awareness Month You Don’t Want to Miss

  • August 29, 2022
  • Emma Day

September is Sickle Cell Awareness Month. Check out these helpful tools and learn more about how to support sickle cell warriors!... Continue Reading

Member Organization Sickle Cell Awareness Month Events 2022

  • August 29, 2022
  • Emma Day

Join an SCDAA member organization at one of these great events this September! The Amazing Race 5K/1K | Starts September 1 |... Continue Reading

Urge Officials to Cosponsor the SCD Comprehensive Care Act

  • August 24, 2022
  • Emma Day

Dear Sickle Cell Community, Over the past several months, SCDAA has been working with congressional sickle cell disease (SCD) champions and... Continue Reading

The Passing of Dr. Samir Ballas

  • August 19, 2022
  • Emma Day

SCDAA regrets to announce that Dr. Samir Ballas passed away on August 12. He was devoted to caring for adults with... Continue Reading

MARAC Advisory Statement: Monkeypox

  • July 20, 2022
  • Emma Day

July 20 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of the news... Continue Reading

Memorial Service for Dr. Kwaku Ohene-Frempong

  • June 22, 2022
  • Emma Day

Dr. Kwaku Ohene-Frempong, a visionary sickle cell doctor and advocate, passed away on May 7, 2022, at 76. A memorial service... Continue Reading

Sickle Cell Care Expansion Act Introduced to the Senate

  • June 22, 2022
  • Emma Day

Ahead of World Sickle Cell Awareness Day on June 19, U.S. Senators Chris Van Hollen (D-Md.) and Cory Booker (D-N.J.) introduced... Continue Reading

SCDAA Joins the Newly Formed Sickle Cell Disease Partnership

  • June 20, 2022
  • Emma Day

Partnership Calls on Policymakers to Implement Proposals in 2020 Landmark Report  Today, in recognition of World Sickle Cell Day on June... Continue Reading

SCDAA names chief financial officer

  • June 15, 2022
  • Emma Day

The Sickle Cell Disease Association of America named Reginald Hart Jr. as chief financial officer. Hart brings more than 20 years... Continue Reading

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