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Novartis Unveils “The Untold Stories of Sickle Cell Disease,” a worldwide patient story project.

  • June 21, 2019
  • Burrell Jacqueline

On June 19, 2019, for World Sickle Cell Awareness Day, Novartis unveiled “The Untold Stories of Sickle Cell Disease,” a worldwide... Continue Reading

Shine the Light on Sickle Cell” Campaign Celebrates the 10th Anniversary of World Sickle Cell Awareness Day

  • June 17, 2019
  • Burrell Jacqueline

SiNERGe and Sickle Cell Disease Association of America, Inc. (SCDAA) are collaborating with sickle cell advocacy groups, community-based organizations, hospitals, governments... Continue Reading

GBT Awards More than $200,000 in Grants to Five Nonprofit Organizations through New ACCEL Program Aimed at Improving Access to Healthcare for People Living with Sickle Cell Disease

  • June 17, 2019
  • Burrell Jacqueline

Innovative Healthcare Programs for Sickle Cell Community On June 10, 2019, Global Blood Therapeutics, Inc. (GBT) (NASDAQ: GBT) announced that five... Continue Reading

Congressional Briefing on Progress in Sickle Cell Disease Treatment & Policy Implications

  • June 12, 2019
  • Burrell Jacqueline

TUESDAY, JUNE 18, 2019 | 2:30 – 3:30 PM DIRKSEN SENATE OFFICE BUILDING, ROOM G50 RSVP: Betsy Foss-Campbell, bfoss@asgct.org Join us... Continue Reading

National Family, Patient, Public Sector, and Multi-employer Groups Join Effort to Protect Health Care Coverage

  • May 23, 2019
  • Burrell Jacqueline

The Alliance to Fight the 40 | Don’t Tax My Health Care, a broad-based coalition committed to repealing the 40 percent... Continue Reading

2019 Sickle Cell Disease Therapeutics Conference

  • April 23, 2019
  • Justin Bost

Mark your calendars for the 2019 Sickle Cell Disease Therapeutics Conference on Sept. 10th in Washington, DC. SCDAA’s Chief Medical Officer,... Continue Reading

SCDAA Hires New Director of Development & Special Initiatives

  • April 2, 2019
  • Justin Bost

Sonia Perkins is an experienced leader and business development professional who brings a proven track record spanning more than 13 years... Continue Reading

Pfizer, Sickle Cell Advocates Address Disease During Black Press Week

  • March 27, 2019
  • Justin Bost

SCDAA President/CEO Beverley Francis-Gibson joined Lori Luck, the global medical director for Pfizer Rare Disease and Angie Snyder, a professor at Georgia... Continue Reading

Emerge Woman Magazine Partners with Sickle Cell Disease Association of America, Inc. to Increase Awareness about Sickle Cell Disease

  • March 26, 2019
  • Justin Bost

Sickle Cell Disease Association of America, Inc. (SCDAA) and Emerge Woman Magazine have a mutual goal of ensuring that as many people as possible... Continue Reading

The Sickle Cell Community Has Rallied Together to Join Generation S!

  • March 12, 2019
  • Justin Bost

We are so excited to give you a glimpse of the amazing stories from YOU – the sickle cell community who... Continue Reading

CBS 60 Minutes Segment on Gene Therapy Airs March 10th

  • March 9, 2019
  • Justin Bost

On Sunday, March 10 at 7:00 p.m. ET, NIH Director Dr. Francis Collins and NIH senior investigator Dr. John Tisdale will be part of a CBS... Continue Reading

Maryland Sickle Cell Disease Association Hosts Annual SCD Day in Annapolis on March 13th

  • March 7, 2019
  • Justin Bost

The Maryland Sickle Cell Disease Association (MSCDA) will host its Annual Sickle Cell Disease (SCD) Day in Annapolis on March 13,... Continue Reading

Texas State Representative Jarvis Johnson Files Four Sickle Cell Disease Related Bills

  • March 7, 2019
  • Justin Bost

Sickle Cell Association of Houston has been working on new state legislation in Texas, and on March 6, 2019, State Representative... Continue Reading

Jordin Sparks Discusses the Emotional and Social Impact of Sickle Cell Disease

  • February 28, 2019
  • Justin Bost

Jordin Sparks is a Grammy-nominated, multi-platinum recording artist, but she also wants to spark a conversation about the emotional and social... Continue Reading

40th Anniversary — Sickle Cell Road Race / Walk

  • February 28, 2019
  • Justin Bost

7K Run/ 4K Walk Tri-Cities High School 2575 Harris Street East Point, GA 9AM Sharp Register Today!  Free T-Shirt to all... Continue Reading

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