Walk with the Stars is one of SCDAA’s largest events dedicated to finding better treatments and a universal cure for sickle cell disease. Every dollar raised goes towards preventing the complications of sickle cell disease through awareness, education, advocacy and research. SCDAA to-date has raised over $690,000 for better treatments and improvements in the quality of health for individuals, families and communities affected by sickle cell disease. Members from the sickle cell community tell us all the time how valuable and important this event is to not only bringing together the community, but also to bringing attention to this life-threatening rare disease. Please see below to hear directly from individuals whose lives have been affected by sickle cell disease.
Nikia Vaughan Wife and Mother Sickle Cell SS Patients Communications Coordinator SiNERGe Community Health Worker SiNERGe Sickle Cell Advocate
As not only a caregiver for 2 individuals who have Sickle Cell Disease SS, I am also a professional and community advocate for sickle cell disease. My day to day is sickle cell awareness and advocacy. As I continue to learn more and more about sickle cell, I better understand the need for research and why raising not only awareness is important, but also the urgency of funding.
Our community is under-served, not well versed and not educated properly about sickle cell disease.
With your participation in the 6th Annual Walk with the Stars, we can help to raise money and to change the dynamic of our community with proper funding, and research to find a universal cure for one of the oldest genetic diseases that exist. We must stop getting and putting out incorrect information into our communities about research. Know the facts, study the pros and cons. Visit research pages such as NIH and companies who want to help the community. Ask questions to professionals. Don’t get caught up in the “SOCIAL MEDIA HYPE”. Because often times our motto is, “If it’s on the Internet it must be true.” It is our responsibility to create a positive dynamic for our community so that when we get together, we understand the reason why we walk, the reason why we fundraise and why it is so important that we continue to spread the word to get the funding our sickle cell community not only needs, but deserves!