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Recent News from SCDAA

MARAC Statement on Gene Therapy & Bone Marrow Therapies

  • May 15, 2021
  • admin

Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other... Continue Reading

GBT and SCDAA Kick Off “Lift Every Voice to Shine the Light on Sickle Cell”

  • May 4, 2021
  • admin

May 04, 2021 at 8:00 AM EDT SOUTH SAN FRANCISCO, Calif. and HANOVER, Md., May 04, 2021 (GLOBE NEWSWIRE) —In recognition... Continue Reading

SCDAA partners with Sickle Cell Community Consortium

  • April 28, 2021
  • admin

Sickle Cell Disease Association of America partnered with the Sickle Cell Community Consortium to advocate for legislation benefiting people with sickle... Continue Reading

SCDAA Launches New Educational Materials to Support Children’s Blood Transfusion

  • April 1, 2021
  • admin

Sickle Cell Disease Association of America, Inc. (SCDAA) and Hemanext Inc., a privately held medical technology company dedicated to improving the... Continue Reading

Temporary Suspension of Clinical Trials

  • March 2, 2021
  • admin

  March 1, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of... Continue Reading

Black History Month: Dr. Roland Scott

  • February 26, 2021
  • admin

For our final #SCDHistoryHighlight of Black History month, we are excited to reflect on the life and work of Dr. Roland... Continue Reading

Black History Month 2021: Dr. Angella Dorothea Ferguson

  • February 19, 2021
  • admin

We’re excited to continue our celebration of Black history this week by highlighting the life and work of Dr. Angella Dorothea Ferguson,... Continue Reading

Statement from SCDAA MARAC

  • February 17, 2021
  • admin

February 16, 2021 – We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical... Continue Reading

SCDAA Celebrates Black History Month 2021

  • February 5, 2021
  • admin

Sickle cell disease plays an important role in black history, and vice versa. This month, we will highlight African American sickle... Continue Reading

SCDAA promotes Kevin Amado Jr.

  • January 12, 2021
  • admin

Sickle Cell Disease Association of America promoted Kevin Amado Jr. to community impact and engagement manager. Amado joined the association last... Continue Reading

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