MARAC Statement on Gene Therapy & Bone Marrow Therapies
Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other... Continue Reading
GBT and SCDAA Kick Off “Lift Every Voice to Shine the Light on Sickle Cell”
May 04, 2021 at 8:00 AM EDT SOUTH SAN FRANCISCO, Calif. and HANOVER, Md., May 04, 2021 (GLOBE NEWSWIRE) —In recognition... Continue Reading
SCDAA partners with Sickle Cell Community Consortium
Sickle Cell Disease Association of America partnered with the Sickle Cell Community Consortium to advocate for legislation benefiting people with sickle... Continue Reading
SCDAA Launches New Educational Materials to Support Children’s Blood Transfusion
Sickle Cell Disease Association of America, Inc. (SCDAA) and Hemanext Inc., a privately held medical technology company dedicated to improving the... Continue Reading
Temporary Suspension of Clinical Trials
March 1, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of... Continue Reading
Black History Month: Dr. Roland Scott
For our final #SCDHistoryHighlight of Black History month, we are excited to reflect on the life and work of Dr. Roland... Continue Reading
Black History Month 2021: Dr. Angella Dorothea Ferguson
We’re excited to continue our celebration of Black history this week by highlighting the life and work of Dr. Angella Dorothea Ferguson,... Continue Reading
Statement from SCDAA MARAC
February 16, 2021 – We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical... Continue Reading
SCDAA Celebrates Black History Month 2021
Sickle cell disease plays an important role in black history, and vice versa. This month, we will highlight African American sickle... Continue Reading
SCDAA promotes Kevin Amado Jr.
Sickle Cell Disease Association of America promoted Kevin Amado Jr. to community impact and engagement manager. Amado joined the association last... Continue Reading