Browse our Stay Connected

Stay Connected

NBC News Covers the Signing of the Sickle Cell Treatment Act of 2018!

NBC News reporter Chandelis R. Duster wrote an article covering the signing of the Sickle Cell Treatment Act of 2018! Below...

Continue Reading

The President Signs the Sickle Cell Treatment Act of 2018!

Advocacy Efforts Create Legislative Victory! On December 18, 2018, S.2465 – The Sickle Cell Disease and Other Heritable Blood Disorders Research,...

Continue Reading

Read a New Abstract on Camps for Children With Sickle Cell!

Written by Dr. Lewis Hsu, the SCDAA’s Vice Chief Medical Officer, the abstract below is included in a new article published...

Continue Reading

Cincinnati Children’s Hospital Announces 2019 Hemoglobinopathy Counselor Training Course!

For over 10 years, Cincinnati Children’s Hospital Medical Center has offered a comprehensive hemoglobinopathy counselor training course to educate and train...

Continue Reading

Join Us for a Conversation about Sickle Cell!

Mark Your Calendars! We are excited to be partnering with GW School of Medical & Health Sciences, the National Heart, Lung...

Continue Reading

Congress Has Passed the Sickle Cell Treatment Act!

Congress Passed the Sickle Cell Treatment Act of 2018!  A Wonderful Victory for the Sickle Cell Community On December 10, 2018, S.2465...

Continue Reading

PRESS RELEASE – GBT Announces the FDA Agrees to Submit a New Drug Application for the Approval of Voxelotor

GBT Announces U.S. FDA Agrees with its Proposal Relating to Accelerated Approval Pathway for Voxelotor for the Treatment of Sickle Cell...

Continue Reading

Rare Disease Week 2019 Preparations are Underway!

Greetings Everyone! It’s that time of year again – Rare Disease Week 2019 preparations are underway! This page contains hyperlinks with important...

Continue Reading

The Washington Post Article Features Biree Andemariam, the Chief Medical Officer of the SCDAA

“We are at such a turning point,” said Biree Andemariam, the Chief Medical Officer of the SCDAA in an article published...

Continue Reading

Leah Hill joins the SCDAA National Staff as Project Manager!

The SCDAA is pleased to announce that Leah Hill joins the National Staff as Project Manager. In this capacity, she will...

Continue Reading

Sickle Cell Disease Group Launches Registry for Oft-Ignored Patients

Check out the June 27th article from Associations Now, a publication of the American Society of Associations Executives. The article includes an...

Continue Reading

Webinar: Multi-team Approach to Raise Awareness of Sickle Cell Disease

To raise awareness and provide education and guidance about Sickle Cell Disease management. Webinar Objectives: Enhance understanding of the collaborative role...

Continue Reading

SCDAA 46th Annual Convention: Keynote Speakers Announced!

We are excited to announce the keynote speakers for the 46th Annual National Convention. These individuals are leading medical practitioners and...

Continue Reading

Contact the Senate HELP Committee Today About New Language Added to S.2465

On July 25, 2018, the Senate Health, Education, Labor, and Pensions (HELP) Committee unanimously approved legislation (S. 2465) sponsored by Senators...

Continue Reading

Congressional Briefing on Sickle Cell Trait

Congressional Briefing on Sickle Cell Trait Wednesday, September 5, 2018 12:00 p.m. – 1:30 p.m. United States Capitol Visitor Center, Room...

Continue Reading


				
Powered by DoJiggy Nonprofit Website Hosting
productioneaa6