NBC News Covers the Signing of the Sickle Cell Treatment Act of 2018!
NBC News reporter Chandelis R. Duster wrote an article covering the signing of the Sickle Cell Treatment Act of 2018! Below...
Continue Reading
The President Signs the Sickle Cell Treatment Act of 2018!
Advocacy Efforts Create Legislative Victory! On December 18, 2018, S.2465 – The Sickle Cell Disease and Other Heritable Blood Disorders Research,...
Continue Reading
Read a New Abstract on Camps for Children With Sickle Cell!
Written by Dr. Lewis Hsu, the SCDAA’s Vice Chief Medical Officer, the abstract below is included in a new article published...
Continue Reading
Cincinnati Children’s Hospital Announces 2019 Hemoglobinopathy Counselor Training Course!
For over 10 years, Cincinnati Children’s Hospital Medical Center has offered a comprehensive hemoglobinopathy counselor training course to educate and train...
Continue Reading
Join Us for a Conversation about Sickle Cell!
Mark Your Calendars! We are excited to be partnering with GW School of Medical & Health Sciences, the National Heart, Lung...
Continue Reading
Congress Has Passed the Sickle Cell Treatment Act!
Congress Passed the Sickle Cell Treatment Act of 2018! A Wonderful Victory for the Sickle Cell Community On December 10, 2018, S.2465...
Continue Reading
PRESS RELEASE – GBT Announces the FDA Agrees to Submit a New Drug Application for the Approval of Voxelotor
GBT Announces U.S. FDA Agrees with its Proposal Relating to Accelerated Approval Pathway for Voxelotor for the Treatment of Sickle Cell...
Continue Reading
Rare Disease Week 2019 Preparations are Underway!
Greetings Everyone! It’s that time of year again – Rare Disease Week 2019 preparations are underway! This page contains hyperlinks with important...
Continue Reading
The Washington Post Article Features Biree Andemariam, the Chief Medical Officer of the SCDAA
“We are at such a turning point,” said Biree Andemariam, the Chief Medical Officer of the SCDAA in an article published...
Continue Reading
Leah Hill joins the SCDAA National Staff as Project Manager!
The SCDAA is pleased to announce that Leah Hill joins the National Staff as Project Manager. In this capacity, she will...
Continue Reading