On July 25, 2018, the Senate Health, Education, Labor, and Pensions (HELP) Committee unanimously approved legislation (S. 2465) sponsored by Senators Tim Scott (R-SC) and Cory Booker (D-NJ) to address issues related to sickle cell disease (SCD). This important legislation reauthorizes sickle cell disease prevention and treatment grants awarded by the Health Resources and Services Administration (HRSA) and authorizes the federal government to award data collection grants to states, academic institutions, and non-profit organizations with the goal of better understanding the prevalence and distribution of heritable blood disorders, including SCD, and the associated health outcomes and complications of these disorders.

There is additional language included by the Senate HELP Committee that we need to address immediately – “heritable blood disorders, including sickle cell disease. ” This language broadens the reach beyond just “sickle cell disease,” as was originally drafted. We need community-based organizations serving the sickle cell community to contact the Committee Chair, Senator Lamar Alexander; Senator Cory Booker (D-NJ); and Senator Tim Scott (R-SC).

Below, we have links to letter templates that you can use to craft your letter to these senators. We also have a contact list below.

Join us in our advocacy efforts and reach out these senators today!

Letter Templates & Contact List

Senator Lamar Alexander Letter Template
Senator Cory Booker Letter Template
Senator Tim Scott Letter Template
Contact List

Name Role Phone Fax Website Twitter
Representative Danny Davis Author – H.R. 2410 202-225-5006 773-533-7530 https://davis.house.gov/ @RepDannyDavis
Senator Cory Booker Author – S. 2465 202-224-3224 202-224-8378 https://www.booker.senate.gov/ ‎@SenBooker
Senator Tim Scott Author – S. 2465 202-224-6121 202-228-5143 https://www.scott.senate.gov/ @SenatorTimScott
Senator Lamar Alexander Chair Senate HELP Committee 202-224-4944 202- 228-3398 https://www.alexander.senate.gov/public/ @SenAlexander
Senator Patty Murray Ranking Member HELP Committee 202-224-2621 202-224-0238 https://www.murray.senate.gov/public/ @PattyMurray