SCDAA Medical Research & Advisory Committee
COVID-19 Resources
- COVID-19 Vaccination Toolkits
- COVID-19 Toolkit for Older Adults & People at Higher Risk
- COVID-19 Vaccine
- COVID-19 CDC CBO Slide Deck
Surveys & Studies
Disability Issues
- Community for Accredited Online Schools
- Employment of People with Disabilities
- National Council on Disability
Educational Materials
- 2020 Report Card on the State of Sickle Cell Disease
- Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action
- Be the Spark – Sickle Cell Disease Education Website
- Blood Stem Cell Transplantation-Fact Sheet
- Diverse Blood Donation Facts
- CDC Materials and Multimedia
- Checklist for SCD Patients Presenting to the Emergency Department During the Pandemic
- oneSCDVoice
- Pediatric-to-Adult Health Care Transition Family Toolkit
- The Sickle Cell Disease Council For Change Releases its first report: Improving Vaso-occlusive Crisis Management
- Sickle Cell Books from Hilton Publishing
- Talking with Doctors Training
Medical Links
- American Pain Foundation
- American Society of Hematology
- Centers for Disease Control
- Emory University Sickle Cell Information Center
- Health Power
- SCDAA Sickle Cell Disease Educational Information Repository
- National Foundation for Transplants
- National Marrow Donor Program
- National Organization for Rare Disorders
- National Pain Foundation
- Sibling Donor Cord Blood Program
- Your Genes, Your Health