New Publications Emphasize Inequities in Pediatric SCD Care
This week, two new publications call attention to the barriers to care children with SCD face. Prioritizing Sickle Cell Disease, an article co-authored... Continue Reading
MARAC Advisory Statement: Immunizations
August is National Immunization Awareness Month. What does that mean for individuals with sickle cell disease (SCD)? The Big Picture from... Continue Reading
Tools for Sickle Cell Awareness Month You Don’t Want to Miss
September is Sickle Cell Awareness Month. Check out these helpful tools and learn more about how to support sickle cell warriors!... Continue Reading
Member Organization Sickle Cell Awareness Month Events 2022
Join an SCDAA member organization at one of these great events this September! The Amazing Race 5K/1K | Starts September 1 |... Continue Reading
Urge Officials to Cosponsor the SCD Comprehensive Care Act
Dear Sickle Cell Community, Over the past several months, SCDAA has been working with congressional sickle cell disease (SCD) champions and... Continue Reading
The Passing of Dr. Samir Ballas
SCDAA regrets to announce that Dr. Samir Ballas passed away on August 12. He was devoted to caring for adults with... Continue Reading
MARAC Advisory Statement: Monkeypox
July 20 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of the news... Continue Reading
Memorial Service for Dr. Kwaku Ohene-Frempong
Dr. Kwaku Ohene-Frempong, a visionary sickle cell doctor and advocate, passed away on May 7, 2022, at 76. A memorial service... Continue Reading
Sickle Cell Care Expansion Act Introduced to the Senate
Ahead of World Sickle Cell Awareness Day on June 19, U.S. Senators Chris Van Hollen (D-Md.) and Cory Booker (D-N.J.) introduced... Continue Reading
SCDAA Joins the Newly Formed Sickle Cell Disease Partnership
Partnership Calls on Policymakers to Implement Proposals in 2020 Landmark Report Today, in recognition of World Sickle Cell Day on June... Continue Reading