Urge Officials to Cosponsor the SCD Comprehensive Care Act
Dear Sickle Cell Community, Over the past several months, SCDAA has been working with congressional sickle cell disease (SCD) champions and... Continue Reading
The Passing of Dr. Samir Ballas
SCDAA regrets to announce that Dr. Samir Ballas passed away on August 12. He was devoted to caring for adults with... Continue Reading
MARAC Advisory Statement: Monkeypox
July 20 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of the news... Continue Reading
Memorial Service for Dr. Kwaku Ohene-Frempong
Dr. Kwaku Ohene-Frempong, a visionary sickle cell doctor and advocate, passed away on May 7, 2022, at 76. A memorial service... Continue Reading
Sickle Cell Care Expansion Act Introduced to the Senate
Ahead of World Sickle Cell Awareness Day on June 19, U.S. Senators Chris Van Hollen (D-Md.) and Cory Booker (D-N.J.) introduced... Continue Reading
SCDAA Joins the Newly Formed Sickle Cell Disease Partnership
Partnership Calls on Policymakers to Implement Proposals in 2020 Landmark Report Today, in recognition of World Sickle Cell Day on June... Continue Reading
SCDAA names chief financial officer
The Sickle Cell Disease Association of America named Reginald Hart Jr. as chief financial officer. Hart brings more than 20 years... Continue Reading
SCDAA Releases Comments on the CDC’s Opioid Guidelines
The Centers for Disease Control and Prevention (CDC) recently drafted an update to its guidelines for prescribing opioids and reached out... Continue Reading
In Memory of Dr. Kwaku Ohene-Frempong
We are devastated to learn of the death of Dr. Kwaku Ohene-Frempong on Saturday, May 7, 2022. Dr. Ohene-Frempong was a... Continue Reading
SCDAA recognized for leadership
The Sickle Cell Disease Association of America received the Abbey S. Meyers Leadership Award from the National Organization for Rare Disorders.... Continue Reading