MARAC Advisory Statement: Update About COVID-19
December 23, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee reminds the sickle cell community... Continue Reading
SCDAA News Advisory: Partial Hold on Gene Therapy Trial
On December 20, the FDA placed a partial hold on bluebird bio’s clinical program for lovotibeglogene autotemcel (lovo-cel) gene therapy, temporarily... Continue Reading
SCDAA names Regina Hartfield CEO
The Sickle Cell Disease Association of America (SCDAA) named Regina Hartfield as CEO and president effective Jan. 14, 2022. Hartfield has served... Continue Reading
SCDAA News Advisory: Salmonella and Sickle Cell Disease
Over the past few months, more than 1,000 people in the U.S.A. and Canada were infected with a bacteria called Salmonella.... Continue Reading
A Word From Our Sponsor: bluebird bio
Thank you to bluebird bio for their generous support of our 49th Annual National Convention! How can you help to spark... Continue Reading
SCDAA launches clinical trial finder
HANOVER, Md.—The Sickle Cell Disease Association of America launched a sickle cell disease clinical trial finder, a centralized, simple-to-navigate website to... Continue Reading
SCDAA holds 49th annual national convention virtually
The Sickle Cell Disease Association of America will hold its 49th annual national convention virtually this year from Tuesday, Oct. 12,... Continue Reading
MARAC Advisory Statement Update About COVID-19 Vaccines
September 24, 2021 — News about COVID-19 continues to move quickly as we weather the pandemic. The Sickle Cell Disease Association... Continue Reading
GBT and Sickle Cell Disease Association of America to Host 10th Annual Sickle Cell Disease (SCD) Therapeutics Conference
Centers for Medicare & Medicaid Services (CMS) Administrator Chiquita Brooks-LaSure to deliver keynote SOUTH SAN FRANCISCO, Calif., and BALTIMORE – September... Continue Reading
MARAC Issues Updated COVID-19 Guidance
August 26, 2021 – The Sickle Cell Disease Association of America Medical and Research Advisory Committee has released two statements with... Continue Reading