MARAC Statement: Health Insurance Coverage for MSD SCT
MARAC Statement: Health Insurance Coverage for Hematopoietic Stem Cell Transplant for Sickle Cell Disease from HLA-matched Sibling Donor (MSD HCT) Sept.... Continue Reading
MARAC Statement: Update About COVID
Sept. 16, 2023 – The worldwide pandemic of COVID-19 (SARS-CoV2) infections seem to have settled down, and we are now seeing... Continue Reading
SCDAA and MedicAlert Foundation Launch Pilot Program
Leading Sickle Cell Organization and MedicAlert Foundation Launch Pilot Program to Improve Emergency Care During Sickle Cell Pain Crises Non-profits partner to... Continue Reading
Sickle Cell Awareness Month 2023 Events
All across the country, our member organizations are hosting exciting events for Sickle Cell Awareness Month this September. Check out the... Continue Reading
Abstracts Accepted Until 11:59 p.m. PST
This morning, we were notified that some users experienced issues using our 2023 National Abstract Competition portal. This issue has been... Continue Reading
MARAC Statement: Crizanlizumab (Adakveo)
July 7, 2023 – SCDAA’s Medical and Research Advisory Committee (MARAC) notes that the European Medicines Agency’s (EMA) Committee for Medicinal... Continue Reading
SCDAA Teams with MedicAlert Foundation
Sickle Cell Disease Association of America Teams with MedicAlert Foundation to Improve Emergency Outcomes During Sickle Cell Crises Nonprofits partner to... Continue Reading
Afimmune joins the SCD C.A.R.E.S. Consortium
Dublin, Ireland, 19 June 2023: Afimmune, a clinical stage biopharmaceutical company developing novel rare disease therapeutics, today announced it has been invited to... Continue Reading
CMO Speaks: Gene Therapy for SCD (Part 1)
CMO Speaks is a blog featuring the voices of SCDAA’s clinical leadership team. Part 1 of our Gene Therapy series was... Continue Reading
SCDAA Announces FY24 Legislative Priorities
Did you know that the federal government is poised to make some of the biggest decisions in sickle cell history right... Continue Reading