Category Archives

MARAC Statements

MARAC Statement on Gene Therapy & Bone Marrow Therapies

  • May 20, 2021
  • emma

Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other... Continue Reading

Temporary Suspension of Clinical Trials

  • March 2, 2021
  • emma

  March 1, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of... Continue Reading

Statement from SCDAA MARAC

  • February 17, 2021
  • emma

February 16, 2021 – We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical... Continue Reading

MARAC Advisory Statement: COVID-19 Vaccines

  • December 15, 2020
  • emma

Download the MARAC Alert | Download Spanish Translation | Download French Translation December 14, 2020 – News is evolving rapidly about... Continue Reading

MARAC Advisory Statement on Post-secondary and Boarding School Education in the Age of COVID-19

  • July 31, 2020
  • kwanh

SHOW THIS TO YOUR SCHOOL ADMINISTRATOR TO HELP THEM HELP YOU. July 31, 2020 – Opportunities for education after high school include... Continue Reading

MARAC Advisory Statement for SCD Patients Who are Teachers, Administrators, and Other Support Staff during School Reopening

  • July 31, 2020
  • kwanh

SHOW THIS TO YOUR EMPLOYER TO HELP THEM HELP YOU. July 31, 2020 – The Medical and Research Advisory Committee (MARAC) of... Continue Reading

SCDAA MARAC Position on 2020 School Reopening

  • July 27, 2020
  • kwanh

SCDAA MARAC Position on 2020 School Reopening SHOW THIS TO YOUR CHILD’S SCHOOL PRINCIPAL TO HELP THEM HELP YOU. July 27,... Continue Reading

MARAC Advisory Statement Regarding SCD Patients during the time of “Reopening” the U.S. Economy

  • April 30, 2020
  • kwanh

May 14, 2020 – On Thursday April 16, 2020, the U.S. Coronavirus Taskforce provided recommendations on reopening the economy, giving states... Continue Reading



				
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