CMS Expands Access to the CGT Access Model
On July 15, 2025, the Centers for Medicare & Medicaid Services (CMS) announced expansions to the Cell and Gene Therapy (CGT)... Continue Reading
SCDAA Statement on the Federal Budget Bill
On July 4, President Trump signed the One Big Beautiful Bill Act into law. SCDAA shares the concerns of many in... Continue Reading
In Memory of James E. Rawlings
With great sadness, SCDAA shares the news of the passing of James E. Rawlings, president and CEO of Michelle’s House (SCDAA,... Continue Reading
Sickle Cell Disease Association names membership manager
The Sickle Cell Disease Association of America Inc., a national nonprofit membership organization that advocates for people affected by sickle cell... Continue Reading
In Memory of Dr. Winfred Wang
SCDAA mourns the loss of prominent pediatric hematologist and sickle cell provider Dr. Winfred Wang, who passed away on April 9... Continue Reading
In Memory of Dr. Gwendolyn Poles-Corker
With great sadness, SCDAA shares the news of the loss of Dr. Gwendolyn Poles-Corker on April 8, 2025. The 71-year-old was... Continue Reading
SCDAA names events manager
The Sickle Cell Disease Association of America Inc., a national nonprofit membership organization that advocates for people affected by sickle cell... Continue Reading
Advocacy Alert: Save the Sickle Cell Data Collection Program
Last week, the Trump administration announced drastic changes and reductions to federal health programs that support the sickle cell disease community.... Continue Reading
SCDAA Statement on the Measles Outbreak
SCDAA is aware of and monitoring the measles outbreaks that have been reported in several states. There is a fair amount... Continue Reading
Black History Month: Our Current Member Organizations
As Black History Month ends, we would like to look to the future for our final #SCDHistoryHighlight at the amazing work... Continue Reading