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The Kidney Cancer Association and SCDAA launch KNOW & TELL

  • June 21, 2021
  • admin

New campaign to raise awareness about connection between sickle cell trait and deadly form of kidney cancer. The Kidney Cancer Association... Continue Reading

The Hibiscus Study is Enrolling Volunteers

  • June 6, 2021
  • admin

Study Title: An adaptive, randomized, placebo-controlled, double-blind, multi-center study of oral FT-4202, a pyruvate kinase activator, in patients with sickle cell... Continue Reading

Walk with the Stars to support Sickle Cell Disease Association of America

  • May 17, 2021
  • admin

Sickle Cell Disease Association of America will hold the eighth annual Walk with the Stars fundraiser, where participating teams and individuals... Continue Reading

MARAC Statement on Gene Therapy & Bone Marrow Therapies

  • May 15, 2021
  • admin

Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other... Continue Reading

MARAC Statement on Gene Therapy & Bone Marrow Therapies

  • May 15, 2021
  • admin

Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other... Continue Reading

GBT and SCDAA Kick Off “Lift Every Voice to Shine the Light on Sickle Cell”

  • May 4, 2021
  • admin

May 04, 2021 at 8:00 AM EDT SOUTH SAN FRANCISCO, Calif. and HANOVER, Md., May 04, 2021 (GLOBE NEWSWIRE) —In recognition... Continue Reading

SCDAA partners with Sickle Cell Community Consortium

  • April 28, 2021
  • admin

Sickle Cell Disease Association of America partnered with the Sickle Cell Community Consortium to advocate for legislation benefiting people with sickle... Continue Reading

SCDAA’s Teen Ambassador Contest is Open!

  • April 8, 2021
  • admin

Could you be our next Teen Ambassador? SCDAA is searching for the newest members of our team to represent their generation... Continue Reading

SCDAA Launches New Educational Materials to Support Children’s Blood Transfusion

  • April 1, 2021
  • admin

Sickle Cell Disease Association of America, Inc. (SCDAA) and Hemanext Inc., a privately held medical technology company dedicated to improving the... Continue Reading

SCDAA names government relations manager

  • March 31, 2021
  • admin

Sickle Cell Disease Association of America named Nathan Parsons as government relations manager. Parsons brings experience in politics, policy and legislation.... Continue Reading