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SCDAA names government relations manager

  • March 31, 2021
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Sickle Cell Disease Association of America named Nathan Parsons as government relations manager. Parsons brings experience in politics, policy and legislation.... Continue Reading

SCDAA names program manager

  • March 23, 2021
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Sickle Cell Disease Association of America (SCDAA) named Briana Hunter program manager. In her position, Hunter oversees the association’s Newborn Screening... Continue Reading

Temporary Suspension of Clinical Trials

  • March 2, 2021
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  March 1, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of... Continue Reading

Statement from SCDAA MARAC

  • February 17, 2021
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February 16, 2021 – We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical... Continue Reading

MARAC Advisory Statement: COVID-19 Vaccines

  • December 15, 2020
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Download the MARAC Alert | Download Spanish Translation | Download French Translation December 14, 2020 – News is evolving rapidly about... Continue Reading

Sickle Cell Disease Association names leadership

  • November 6, 2020
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Sickle Cell Disease Association of America named Dr. Lewis Hsu chief medical officer and JaKela Walker chair of the board of... Continue Reading

Sickle Cell Disease Association of America and Aruvant Sciences Forge New Partnership to Educate Around Gene Therapy

  • October 13, 2020
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The Sickle Cell Disease Association of America (SCDAA) and Aruvant Sciences are proud to announce a new partnership to create educational... Continue Reading

Sickle Cell Disease Association holds 48th annual national convention virtually

  • October 5, 2020
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Sickle Cell Disease Association of America will hold its 48th annual national convention virtually this year from Tuesday, Oct. 13, through... Continue Reading

September is Sickle Cell Awareness Month

  • September 1, 2020
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Sickle Cell Disease Association celebrates National Sickle Cell Awareness Month Conferences, advocacy, blood donations and other events held throughout September HANOVER,... Continue Reading

MARAC Advisory Statement on Post-secondary and Boarding School Education in the Age of COVID-19

  • July 31, 2020
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SHOW THIS TO YOUR SCHOOL ADMINISTRATOR TO HELP THEM HELP YOU. July 31, 2020 – Opportunities for education after high school include... Continue Reading