Category Archives

News

GBT and Sickle Cell Disease Association of America to Host 10th Annual Sickle Cell Disease (SCD) Therapeutics Conference

  • September 8, 2021
  • admin

Centers for Medicare & Medicaid Services (CMS) Administrator Chiquita Brooks-LaSure to deliver keynote SOUTH SAN FRANCISCO, Calif., and BALTIMORE – September... Continue Reading

MARAC Issues Updated COVID-19 Guidance

  • September 7, 2021
  • admin

August 26, 2021 – The Sickle Cell Disease Association of America Medical and Research Advisory Committee has released two statements with... Continue Reading

SCDAA names government relations manager

  • August 12, 2021
  • admin

Sickle Cell Disease Association of America named John Otsuki as government relations manager. Otsuki brings experience in regulatory and legislative affairs,... Continue Reading

Sickle Cell Disease Association of America announces new teen ambassador

  • July 19, 2021
  • admin

Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected... Continue Reading

The Kidney Cancer Association and SCDAA launch KNOW & TELL

  • June 21, 2021
  • admin

New campaign to raise awareness about connection between sickle cell trait and deadly form of kidney cancer. The Kidney Cancer Association... Continue Reading

MARAC Statement on Gene Therapy & Bone Marrow Therapies

  • May 15, 2021
  • admin

Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other... Continue Reading

MARAC Statement on Gene Therapy & Bone Marrow Therapies

  • May 15, 2021
  • admin

Please note: A previous version of this advisory incorrectly stated that MARAC is aware of three cases of leukemia and other... Continue Reading

GBT and SCDAA Kick Off “Lift Every Voice to Shine the Light on Sickle Cell”

  • May 4, 2021
  • admin

May 04, 2021 at 8:00 AM EDT SOUTH SAN FRANCISCO, Calif. and HANOVER, Md., May 04, 2021 (GLOBE NEWSWIRE) —In recognition... Continue Reading

SCDAA partners with Sickle Cell Community Consortium

  • April 28, 2021
  • admin

Sickle Cell Disease Association of America partnered with the Sickle Cell Community Consortium to advocate for legislation benefiting people with sickle... Continue Reading

SCDAA Launches New Educational Materials to Support Children’s Blood Transfusion

  • April 1, 2021
  • admin

Sickle Cell Disease Association of America, Inc. (SCDAA) and Hemanext Inc., a privately held medical technology company dedicated to improving the... Continue Reading