Congressional Briefing on Progress in Sickle Cell Disease Treatment & Policy Implications
TUESDAY, JUNE 18, 2019 | 2:30 – 3:30 PM DIRKSEN SENATE OFFICE BUILDING, ROOM G50 RSVP: Betsy Foss-Campbell, bfoss@asgct.org Join us... Continue Reading
National Family, Patient, Public Sector, and Multi-employer Groups Join Effort to Protect Health Care Coverage
The Alliance to Fight the 40 | Don’t Tax My Health Care, a broad-based coalition committed to repealing the 40 percent... Continue Reading
2019 Sickle Cell Disease Therapeutics Conference
Mark your calendars for the 2019 Sickle Cell Disease Therapeutics Conference on Sept. 10th in Washington, DC. SCDAA’s Chief Medical Officer,... Continue Reading
SCDAA Hires New Director of Development & Special Initiatives
Sonia Perkins is an experienced leader and business development professional who brings a proven track record spanning more than 13 years... Continue Reading
Pfizer, Sickle Cell Advocates Address Disease During Black Press Week
SCDAA President/CEO Beverley Francis-Gibson joined Lori Luck, the global medical director for Pfizer Rare Disease and Angie Snyder, a professor at Georgia... Continue Reading
Emerge Woman Magazine Partners with Sickle Cell Disease Association of America, Inc. to Increase Awareness about Sickle Cell Disease
Sickle Cell Disease Association of America, Inc. (SCDAA) and Emerge Woman Magazine have a mutual goal of ensuring that as many people as possible... Continue Reading
The Sickle Cell Community Has Rallied Together to Join Generation S!
We are so excited to give you a glimpse of the amazing stories from YOU – the sickle cell community who... Continue Reading
CBS 60 Minutes Segment on Gene Therapy Airs March 10th
On Sunday, March 10 at 7:00 p.m. ET, NIH Director Dr. Francis Collins and NIH senior investigator Dr. John Tisdale will be part of a CBS... Continue Reading
Maryland Sickle Cell Disease Association Hosts Annual SCD Day in Annapolis on March 13th
The Maryland Sickle Cell Disease Association (MSCDA) will host its Annual Sickle Cell Disease (SCD) Day in Annapolis on March 13,... Continue Reading
Texas State Representative Jarvis Johnson Files Four Sickle Cell Disease Related Bills
Sickle Cell Association of Houston has been working on new state legislation in Texas, and on March 6, 2019, State Representative... Continue Reading