Browse our

ASGCT Society Patient Education Program

The American Society of Gene & Cell Therapy (ASGCT) is proud to announce the first release of the Society’s Patient Education program, a new initiative...

Continue Reading

47th Annual National Convention Call for Abstracts

If you are you a researcher, community-based member organization, physician, nurse, social worker or someone working on behalf of people with...

Continue Reading

47th Annual National Convention Theme Announced

Sickle Cell Disease Association of America, Inc. is pleased to announce the theme for the 47th Annual National Convention: Sickle Cell Community...

Continue Reading

SCDAA Hires New Director of Development & Special Initiatives

Baltimore City native, Gary Bonner, will serve as the Director of Development & Special Initiatives. In this capacity, Bonner will oversee SCDAA’s national...

Continue Reading

SCDAA Hires New Care Coordinator

Tiffany Scott will serve as SCDAA’s Care Coordinator for the Health Resources Services Administration (HRSA) grant-funded Newborn Screening Follow-up Program. In...

Continue Reading

CRISPR Therapeutics and Vertex Announce FDA Fast Track Designation for CTX001 for the Treatment of Sickle Cell Disease

CRISPR Therapeutics and Vertex Pharmaceuticals Incorporated today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation...

Continue Reading

Happy Holidays from SCDAA!

The Board of Directors and the staff of the Sickle Cell Disease Association of America, Inc. wish you and your families a safe...

Continue Reading

NBC News Covers the Signing of the Sickle Cell Treatment Act of 2018!

NBC News reporter Chandelis R. Duster wrote an article covering the signing of the Sickle Cell Treatment Act of 2018! Below...

Continue Reading

The President Signs the Sickle Cell Treatment Act of 2018!

Advocacy Efforts Create Legislative Victory! On December 18, 2018, S.2465 – The Sickle Cell Disease and Other Heritable Blood Disorders Research,...

Continue Reading

Read a New Abstract on Camps for Children With Sickle Cell!

Written by Dr. Lewis Hsu, the SCDAA’s Vice Chief Medical Officer, the abstract below is included in a new article published...

Continue Reading

Cincinnati Children’s Hospital Announces 2019 Hemoglobinopathy Counselor Training Course!

For over 10 years, Cincinnati Children’s Hospital Medical Center has offered a comprehensive hemoglobinopathy counselor training course to educate and train...

Continue Reading

Join Us for a Conversation about Sickle Cell!

Mark Your Calendars! We are excited to be partnering with GW School of Medical & Health Sciences, the National Heart, Lung...

Continue Reading

Congress Has Passed the Sickle Cell Treatment Act!

Congress Passed the Sickle Cell Treatment Act of 2018!  A Wonderful Victory for the Sickle Cell Community On December 10, 2018, S.2465...

Continue Reading

PRESS RELEASE – GBT Announces the FDA Agrees to Submit a New Drug Application for the Approval of Voxelotor

GBT Announces U.S. FDA Agrees with its Proposal Relating to Accelerated Approval Pathway for Voxelotor for the Treatment of Sickle Cell...

Continue Reading

Rare Disease Week 2019 Preparations are Underway!

Greetings Everyone! It’s that time of year again – Rare Disease Week 2019 preparations are underway! This page contains hyperlinks with important...

Continue Reading
Powered by DoJiggy Nonprofit Website Hosting
productionf622